My current Oncologist thinks my cancer has changed to a different type. She is also wondering if one of the nodules shown on a recent scan is a different type of cancer or the same as the others? Anyone have two different types of Breast Cancer?
Regarding the Docuseries and Episode 3. While I felt for the two men being featured, I didn't believe that diet alone or any other approach cured them. There are just to many variables. Anyone else have some thoughts?
Cheers, June S.
I have two different types of breast cancer. Er/pr positive her2 negative and triple negative.
Can you tell me how they are treating it? Did you have to change medications? And how was the second cancer discovered? How are you getting on?
Thanks for your reply and wishing you all the best.
Cheers, June S.
I was 1st diagnosed with er/pr positive her2 negative . I was treated with verzenio and anastrozole for 10 months. Then my pet scan showed a new spot which turned out to be tnbc pdl1 positive so they change me to abraxane and tecentriq . It worked for the tnbc but not the er/pr positive. So now I'm on xeloda. I've done 2 cycles. Will be starting my 3rd on Monday. Really hoping it works at shrinking all of the er/pr positive and keep the tnbc gone. Scan end of April.
I have real problems with the people who make money pushing misinformation. You can look thru my posts about Chris Wark. He has a program “Chris Beat Cancer.” His surgeon cut it out. It didn’t metastasize. I’m happy for him but his message is very misleading. There’s a lot of “stuff” like that out there. You have to use your critical thinking. Hay House has a lot of authors that are “out there”. However, Kris Carr is a Hay House author, and I think very highly of her.
I am also leery of anyone touting a cure, especially for a disease that has no cure at this time. Remission and cured are very different. Best to all. Blessings Hannah
I think for anyone to knowingly manipulate the fears of desperate people is evil. Making money from it even worse. Some of these people might believe their schtick. Even worse
I am watching the program with a critical eye. The first 2 episodes were pretty good but the one today turned me off a little. I'm pretty sure the Catholic Church doesn't cause cancer and if I was being overly sensitive, that is what I heard.
I agree that a holistic approach is good as is moderation. I am doing well with a much improved diet AND Ibrance AND prayer AND I've had 2 sound "bath" sessions with a friend that were lovely. That's my recipe and I'm only seven months in...my primary tumor is shrinking and my lung xray last week (not scan) was clear. Not radical remission but living the "new normal"
thanks. I agree with moderation. Do what we can to help ourselves and take the medicine. Not radical but at least some proven success.
Cheers, June S.
Today's episode was soooooo much better. Loved it!
I have my breast cancer tumor first diagnosed two years or more as ER/PR+ and Her2-. During my very short experience with Ibrance (3 months not bc of progression), an infection that I usually get once a year and normally antibiotics cured it before it even started, I guess bc of my cancer and I think more bc of the Ibrance, it got progressively worse. They took me off Ibrance and put me on five weeks of antibiotics until it was clear it was not getting better and I had to have an invasive surgery. I was originally told the recovery period would be about a month and extremely painful.
Well, it turned into almost four months recovery time (They had to cut tunnels in my leg) and it was unbearably painful.
Then when I was ready to go back for treatment, my onco had an appt. with me for me to have a breast ultrasound. The technician kept leaving to show the radiologist the images and she kept coming back. Then I was told I needed to have a mammogram (which is when I realized something was wrong). Then after the mammogram, more ultrasound,
Finally the radiologist doctor came in and told me they found a new cancer tumor that grew from my original one.
I then had to have biopsies of both breasts. I asked my onco why as we already knew what kind of breast cancer I have and then she told me that they needed to be sure it was the same type of cancer that my first tumor was.
First time I learned that you could actually have two different types of cancer in one breast. I was shocked. I never knew that. I was lucky in that it turned out to be the same kind that my original tumor was so my treatment remained the same, Thank God.
I dont want any of those kind of series on TV NOR do I ever spend money or even borrow a book from the library on cancer. I spend too much time on it already. I trust my doctors and trust in them. How does one decide what show or documentary to watch and how to choose which book "That will cure Cancer" of the hundreds of books published on the subject.
I am sorry that you have had these terrible experiences. It was when I had the tumor pushing through the skin that I had surgery to remove the breast. The diagnosis of the tissue that was removed showed a different type of cancer. My oncologist was unsure how to proceed and what medicine to prescribe. She decided a biopsy of a nodule behind my liver, not actually in the liver. Because this was basically a 'fishing expedition' I decided I needed a second opinion. I went to a trusted oncologist in a different city who I had seen before and she said she did not believe my cancer had changed at all. Her diagnosis was that the medicine was suppressing the Estrogen, which it was meant to do, and hence the PR diagnosis. When I reported this to my regular oncologist her reply was, 'that is fair' and then came up with the idea of the biopsy on the nodule. She knows the other oncologist and respects her. But that theory had not occurred to her.
So I am hoping I can switch my care to the second oncologist even though it means a 1 hr. travel time. She is older and more experienced and is well respected.
Cheers, June S.
Hi there...
I know the feeling well.
I was floored also when I learned I had 2 different types. Original breast tumors and lymph nodes hr+ her2-. Metastasis to lungs turned out to be the exact opposite hr pr- her2+. Before I had the lung biopsy I was on Ibrance and it wasn’t working. That’s when they biopsied my lung and found out the different receptor status. I was then put on taxotere herceptin & perjeta. It worked on all of it but when I quit the taxotere the original breast tumor started growing again. Therefore I had a mastectomy back in October. I’m hoping I’m just her2+ now and the herceptin perjeta infusions are still working on the few tumors in my lungs. I hate this roller coast ride I’m on!!! Let me off!
I’m watching the documentaries also. I didn’t like the one today either. I thought it was a little far fetched with they red head lady “pulling” invisible vibes from Joe and he’s not angry anymore.
Best wishes for you also on this ride.
❤️
Stacy
I’m not even going to watch these as I know they’ll annoy me
Barb xx
I have never watched a health docuseries before and if you read my reply above you will see I agree. Save yourself the disappointment and actual disgust at the treatment of the subject. I had hoped for something much more professional.
Cheers, June S.
Oh I quite agree. I didn't see the first two episodes entirely but I felt the same about the third one which I did see. I was hoping to see something, in this series, much more informative and believable. Very disappointing not to mention that annoying background music! This subject is not a place for theatrics
Cheers, June S.
I guess I am going to be the odd man out on this one. I am watching the Hays docuseries and I am thoroughly enjoying it. It speaks to all the things I believe in and I have seen happen to people. Yes, there isn't just one thing that makes the difference! It is a series of things. Each of these people did more than just one thing to cure their cancer. What they are highlighting for each however is the most profound in the many things that each did. I was already reading the book and was so happy that the docuseries is happening at the same time. I know intuitively for myself that there is no way I am leaving everything to my doctors because they don't know everything and Western (allopathic) medicine doesn't cover everything. I believe in a balance - not just adhering to one or the other. Currently I am getting my chemo, but I am also doing deep healing work emotionally and spiritually that I often help my clients with. Often when you are in the helping field you do vastly more for others than you do for yourself and that is a big mistake. I know for a fact I would not be feeling as good as I do had I not taking these additional steps by taking charge of my own health in this way by going deeper into my own healing. I am also doing some herbs and supplements but very little while on the chemo. I wasn't going to do any until after but with this Covid-19, I think its vitally important to boost my immune system as much as possible because the chemo is depleting it. Working on your emotional and spiritual health in a way that increases positive emotions also boosts your immune system.
Each episode in the series is meant to touch on one of the 10 things that you can do in addition to or after the work you are doing with your doctors and on some level I can relate to all of the episodes so far. My first oncologist has awful bedside manner, a cookie cutter thinker, and woefully racist in his conversation with me. I dread every single time I have to see him. I am happily firing him and starting with a new oncologist in a week or two that I believe has my best interest at heart and just taking that is part of taking control of my health which the docuseries advocates.
In 1998, my dad was given a diagnosis of Non-Hodgkins Lymphoma stage IV and was told he had at the most 6 months to live. My dad was a deeply religious and always kept a very positive outlook thru the whole ordeal and simply refused to accept their statement of him having only 6 months. His positivity gave him 4.5 more years where he saw two of his grandchildren being born and enjoyed countless happy moments with his family. Had he believed the doctors he would have curled up in his room and allowed their prediction to come true. My ex-father-in-law who was a surgeon took that dire route. He was diagnosed with lung cancer stage 4th. He went into depression, stayed in his bedroom with the curtains drawn down most of that time blocking his incredible lake view. He died 11 weeks later.
Also energy medicine really does work! Joe was fortunate enough to suspend his doubts and allow himself to be open to possibilities beyond what he had previously known. To be honest about all the buried emotions that were blocked in his body so that he could play the most important role in releasing it. Western medicine is finally realizing this and admitting that it does work. It is usually done as a complement to whatever conventional work you are doing. As a Kemetic Reiki practitioner myself, I have experienced for myself (especially on this journey) and seen clients experience dramatic change for the positive. The thing about it though is the practitioner is NOT the one that heals. Our bodies and minds are the ones that heals itself. We just guide you towards that healing but you must be open to it.
You don't have to agree with everything they are saying in this series. But it wouldn't hurt to take away some nuggets of wisdom that can help lead down a more positive path in this journey that none of us volunteered for. I for sure am doing absolutely everything to make sure I am here a hell of a lot longer than predicted. I deserve that chance. My husband and son's deserve it. What harm can it do?
Peace and light.
I find that the docuseries is not based on good information. There are just too many variables in each person's journey to say this worked or didn't work.
For instance we can say that Ibrance definitely lowers the immune system of some people, no matter who we are or what we do. Some people have no side affects at all. It lowered my immune system to the gutter even though I am known to be one of the most positive, healthy people. I mean my nick name is Pollyanna!
So I can't find nuggets of wisdom in a series that I think is doing more harm than good. Even the title, Radical Remission is wrong I think.
Have a nice day, Cheers, June S.
I agree. I am probably not going to do the really woo woo alternative healing just because it doesn’t suit me. But I have radically changed my diet and am working with an oncology nutritionist who is monitoring things closely and tailoring diet and supplies for what I need. There is no one diet that works for everyone.
I also changed oncologists to one I feel sees me as a whole person, even thought it meant leaving a top cancer center. I’m not sure the first doctor realizes I’m gone! The new one is not alternative at all—he is trained at top schools and believes in modern medicine. But his main focus is treating patients not research which means a different outlook. I decided if the researchers find a cure, I’ll hear about it even if it’s not my doctor who discovered it.
I am also trying to stay involved in the community, volunteering and giving back. And have short term goals and deadlines for work projects to give me a reason to keep going.
This disease will catch up with me eventually, but I hope to live each day in the meantime.
It is early days but my inflammation markers and other indicators have improved dramatically since I was diagnosed in July. Do I mostly credit the Ibrance? Yes. It is a miracle drug when it works. I am not giving up standard of care.
But I firmly believed the diet had helped too. I want to do all I can to bolster my body’s defenses and it is common sense that diet and exercise play a part in that. Will it cure me? No. There is no cure. But it may prolong my quality of life. How long? Only God knows.
I agree, everything isn't for everyone and if the "woo woo" stuff that I do and what the woman did in the docuseries isn't for you then that is perfectly fine. We have to make choices that align with our beliefs and as long as it works for you that is all that counts. You changed your diet and that is one of the most important things you can do.
Awesome that you switched to a team that sees you as a whole person. Its so important to have a team that is on the same page with you. Precisely why I am leaving mine.
Wishing you all the best in the journey.
Thanks.
By the way—I wasn’t meaning to be critical of the reiki you’re doing! I hope it didn’t sound that way. My motto is never say never, so who knows what I’ll try. and I do believe we can impact our treatment for the better!!!
That's ok. I can imagine how it may seem pretty far out especially if you haven't experienced it before or understand what it is about. Again, its ok. There are plenty of things I wouldn't get into that doesn't align with my way of thinking either!
To each his own. Just a short observation on your comment "doctors... don't know everything". We personally won't stick purely to the Dr's advice, excluding everything else, not because "he doesn't know everything" but because they are bound by the invisible walls of their orthodox training and legal liability. Once cancer has metastasized (stage IV), you are declared "incurable" and all their efforts are geared towards "palliative chemo", not cure because for them, at this point, that's not achievable.
Yes I’m in a tizzy over this virus and my dental practice ( I’m still a partner/owner) so don’t want more stress !!...I think you and I have similar views
Gall bladder wounds are healing fine...might have a swim next week but won’t ride till I’m much better ...going to see Bugsy tomorrow...will groom him etc....missing my mates at the yard
All the best
Barb xx
Barb xx
Glad your surgery is healing well. You are tough! It can’t be easy Trying to recover with all the Coronavirus angst and worry on top of everything else. It’s a mental game as well as a physical one.
Give Bugsy an extra carrot for me. So glad you’re going to see him. Even if you can’t ride, the horses are good therapy. Not to mention the yard ladies. Horse people tend to have a pragmatism and dry humor that is refreshing. At least the ones I know.
I went up to groom and let Liam free lunge in the riding arena on Monday . It made me so happy to see him just being a horse— bucking and whinnying with his tail in the air. He thought he was quite the man—very pleased with himself. Didn’t have the heart to remind him he’s a gelding so the ladies were ignoring him. Normally he’s lazy as can be so he must have been feeling good!
My daughter had to come back early from her year abroad in London and just learned yesterday that 2 kids at her university tested positive, so we’ve been banned from the barn for 14 days. It is the right thing of course but I am ashamed to admit I started to cry. Not out of concern for my daughter, but because Liam is as important as Ibrance to me! I am a bad mom!
I am in California and our whole state is now on lock down—but it is ok to care for livestock. My sense is the barn is safer than the supermarket in an era of social distancing as we are outside and on a horse, you don’t get that close to other people. Hopefully after 14 days Honor won’t be ill and we can go back. (Hopefully she won’t be ill for any reason—bad mom again!)
I feel sorry for the stable owners. They have 50 horses and 3 workers who can ride. so if all the boarders stop coming there is no way they can keep all the horses in work. All the spring competitions are cancelled, and coaching at shows is a huge revenue source for the owner. Everyone thinks horses are a posh la do da hobby, but it is a business with workers and payroll and overheads like anything else. This virus has so many knock on impacts beyond just the fear of getting ill. Like your dental practice!!! I just pray that people follow the guidelines, keep their distance and do their bit to shorten its duration. I hear the UK is starting to get hit pretty bad too. I was surprised how long it took to close Honor’s school.
You can tell I’m stuck at home. This was quite the rambling post!!
At least it’s spring!!
It’s getting bad in UK...no carrots to be found today fgs!!
I’ll probably lunge next week when I’m stronger...had a walk today and felt a bit wobbly but no pain apart from the permanent cancer pain..ugh
Other geldings I’ve had have always believed they’re still stallions...but not Bugsy...he’s quite chummy with mares without any naughty intentions...perhaps he’s a gay boy lol
You’re so right about being around horsey people...they’re mad but in a nice way....I include myself in that category
Your daughter must be disappointed having to leave early from university...my youngest daughter is travelling back from her honeymoon...3 weeks in Thailand and Cambodia...she lives in London and will get a shock when she gets back...all online food deliveries have crashed due to selfish panic buying...I’m ashamed of the way some of our people are behaving...fighting in supermarkets over e.g loo roll and pasta...unreal!!
At least we can escape to look after our horses
And you’re not a bad mother!!!
Barb xx
Yes...escape to nature and animals
Our PM was considering shutting London...hope not as I won’t see Miranda...she lives there but I’m being selfish...if it’s necessary then that’s it!
All the best
Barb xx
Hi Sandra: Well regarding biopsies I believe that is the general practice here as well.
It did not make sense to me to do the biopsy so I cancelled it. Turns out at a group clinic meeting on Thursday they all agreed it was not warranted! I was received that information on Friday. Eh gads!
Cheers, June S.
Chronic pain following Stage 4 metastatic breast cancer surgery, chemo and radiation
Has anyone with MBC BEEN DIAGNOSED WITH MULTIPLE MYELOMA?
What have people been told about sugar intake with breast cancer? 
Has anyone been on Eribulin (Halaven)
Were You diagnosed with Mets over age 70, after a gap of 10+ years since early breast cancer?
