I Really like and appreciate this group of ladies with so much info. I would like some advice or suggestions....I was on Ibrance and the fulvestrant injections. Just had my scans and not good results. Now I would like to try Joe Tappens protocol febendazole, CBD oil, tumeric and Vit E. My ongolist is okay with this but suggested I add tamoxifen. What do you ladies think?
Sincerely Grateful
Yvonne
Glad you found this site! Can you tell us a little more...your type of breast cancer and locations of mets? Did you oncologist offer any other options besides tamoxifen? For example, a different CDK 4/6 inhibitor? I take tumeric and other supplements to support my healing but in addition to meds, not alone. Wishing you the best!
Welcome! I'm sorry you had to find us, but it is good you did 
I have been following people taking Fenbendazole, but I'm not sure how successful it really is. I personally would go with the tamoxifen and maybe a different chemo. I know it's a tough and personal choice to make. Whatever treatment you choose, I wish you great results. ❤️
Morning Yvonne,
Joe Tippens was able to achieve complete remission using the protocol his vet friend recommended, so I do believe what he did has merit. I am using an integrative approach to my care (conventional treatment, diet, exercise, supplements and off-label drugs). It is up to you to decide what you will do, but I believe that conventional treatment is very important.
Sophie ❤
Hi there
I think you should take both
Attacking from all sides
I’m on Ibrance letrazole combo but also take membendazole with Metformin and statin and doxycycline
Nothing to lose...however I do know where you’re coming from ....when the traditional meds let you down you just feel it’s all pointless...I’ve felt like that when I had progression in my liver...felt like giving up but I haven’t yet
However I can’t tell you what to do..nor can anyone else but all the best with whatever you decide is best for you
Barb xx
I’m sorry your results weren’t good. Have you read the book Beating cancer with nutrition? it has valuable information. I take the powder vitamins they suggest as well as hemp seeds in a smoothie every day. Seems to be helping me. I will pray for you. 🙏
Thank you wonderful ladies for all your comments. Yes, such a difficult decision. Please pray for me. So appreciate this site and you.
Love and hugs to all. ❤️❤️🙏🏻🙏🏻
You're welcome, Yvonne. I also appreciate this site. Please don't give up. There are so many different things that you can do. I used to think that metastatic cancer was an automatic death sentence, but so many people are able to live with this disease for a very long time and I plan on being one of them. Judy Perkins was cured of metastatic breast cancer, Joe Tippens has survived thanks to his friend's recommendation, Kris Carr has lived with metastatic disease for over 16 years, Jane McLelland was also diagnosed with metastatic disease over 20 years ago, and there are others too. Some are living with stable disease long term (which is also very good news!) while others seem to have been able to go into complete remission.
Sophie x
Thank you so much Sophie for your comments and encouragement. Wishing you the very best. Love and hugs. ❤️❤️🙏🏻🙏🏻
You're welcome, Yvonne. I wish you all the best too. Have a good weekend x
You too Sophie. May I ask if you are doing any drugs along with your conventional treatment. Hugs
Oh boy! There are a few. I am currently taking:
Letrozole, zoladex, zometa (conventional treatment)
Adcal D3, Montmorency cherry capsules, vegan omega 3 capsules, berberine, bitter apricot kernels (40 a day, soaked in water) (supplements)
Metformin, doxycycline, atorvastatin, mebendazole (as part of the COC protocol)
Next week I'm adding:
Chloroquine phosphate, niclosamide, loratidine, acyclovir, dipyridamole, etodolac, propanolol and Onkobel-Pro. I have other supplements I need to pick up on Saturday. I need to make a list of those. My integrative doctor has prescribed these, and some I have obtained elsewhere.
Sophie x
Thank you Sophie. I am going to research some of your supplements. Again wishing you the very best. Love and hugs. ❤️🌹🙏🏻
You're welcome, Yvonne. I sought medical advice before deciding to take these supplements and drugs. So I would suggest you do the same if you are interested in learning more, as I am not a doctor.
Take care,
Sophie x
Yes I will Sophie. Thank you so much for all your advice. Enjoy your day. Hugs. 💞💞
Thank you! I did. I dragged my husband along to all my favourite health food and wholefood shops today in a nearby city. I had a list as long as my arm as I tried to figure out what I needed. I came across a really helpful (not to mention extremely knowledgeable) shop assistant who went through everything on my list and made sure I got what I needed. I am so grateful to her.
Enjoy the rest of your weekend!
Sophie x
Wow that is a lot! I appreciate you sharing all that with us. I’ve only read a tiny bit about some of the COC protocol so far. I am curious but not feeling the need to take beyond the conventional at this point. Was there a point for you when things changed that you decided to take some of these other things?
And how long have you been on most of these that are not the conventional treatment?
Hi,
I started conventional treatment on 16th May 2018. I then had six complementary therapy sessions that are offered for free for cancer patients where I live, physiotherapy, palliative radiotherapy (just one session) and then I started the COC protocol in April 2019. I have been taking supplements for over a year, but am adding more starting tomorrow. I recently stopped seeing the COC doctors, as my integrative doctor follows their protocol, but offers more. I knew that conventional treatment alone would not be enough for me, which is why I gradually started adding more and more. I have also changed my diet, exercise and lifestyle.
Sophie
Seems you have a good choice of doctors! So I understand it was a choice to add more because you felt it would be helpful, vs things getting worse on the conventional treatment alone. Have you noticed any difference in how you feel since you added the COC protocol? Or any noticeable improvement by other markers?
Yes, it was my own choice. My last five CT scans have been stable, with shrinkage of the primary tumour. I feel very well on the COC drugs, with no side effects. I don't know what my tumour markers are, as my oncologist doesn't use them. Or if she does, she doesn't tell me!
Hello, I have been on Mebendazole and metformin for only two weeks and am going to start on tamoxifen and Joe Tappen's protocol once we are in Palm Springs. I am finding metformin is giving me stomach pains so I am going to cut back to 1 tablet a day in a few days. I was taking two a day. I have been stressing about everything so not feeling that great. We are leaving for Palm Springs on the 29th for five months so looking forward to relaxation and lots of sun. I will have scans again in April/May 2020 and pray the results will be better. Wishing you the very best. Love and hugs. ❤️❤️
Hi Yvonne,
Did your doctor put you on two metformin a day straightaway? I started out on 500mg and then the dosage was increased gradually to 1000mg. I hope you soon feel better. I wish you well with Joe Tippens' protocol too. Have a good time in Palm Springs!
Sophie
Yvonne, I would agree with everything all the ladies said. A combo of both is probably a good idea. Do what is right for you.
Thank you marioots. I so appreciate all advice. Have a super day. Hugs. 💞💞💞🙏🏻🙏🏻
Hello. I am on Ibrance and Fulvestrant too. On 16 August, I added Fenbendazole, Vit E, D and K2. My CA15-3 which went up by 10 then 12 points for 2 successive months, went down by 10 points after I took Fenbendazole. I haven’t had a scan yet and am due for my next set of blood tests on Nov 4 so I can’t really say with certainty if the Fenbendazole is working as it’s early days still. I am not experiencing side effects on it though so I will continue to take it for now.
Thank you so much for letting me know this. I wish you the very best on your upcoming scans. Hugs. 💞🙏🏻
Let's hope that the fenbendazole helps! Please let us know how you get on when you get your results. It would be great to hear that you are responding well with your protocol!
Sophie 💓
The CAM website that I trust is the Annie Appleseed Project. It relies on research. That said, a few of the big BC conferences that I have attended had quite a few onc and medical researchers mention that cancer is related to inflammation and that managing inflammation is helpful in treating/controlling cancer. My primary care doctor had just given me a list of things to use to decrease inflammation: turmeric, fish oil, tart cherry juice and glucosamine/chondrotin (I hope I've spelled all those properly, my spell check stopped working). I broke my ankle in a fall on the ice several years ago and it was generally swollen. I started with turmeric and the tart cherry juice and that swelling went down alot within 36 hours. I don't take these daily but at least twice a week. I don't really know if any of it is helping. Personally, I think the wisest thing I have done in the 15 years plus that I have been living with mbc has been getting second opinions from a bc specialist onc at the closest Comprehensive Cancer Center, the top CCs in the US. There is a list of those on the homepage of this group at the right of the page under resources. There are about 50 of those scattered around the US and they have oncs who specialize and do research as well as seeing patients. Those are often the oncs giving talks at major BC conferences around the world. I saw one within 3 weeks of my first diagnosis and then again earlier this year when my beloved long time onc retired. I am fortunate to have a nice lazy bunch of cancer cells that respond well to treatment and haven't ever given me symptoms.
Yeah for you! I think turmeric is great for inflammation. I don’t take it right now but have found it helpful in the past. And thanks for the reminder of Annie Appleseed! An amazing herbalist told me about them many years ago but I always manage to forget about them as a resource!
Hi! I do an integrative approach. I take Essiac Tea in addition to my targeted and immunotherapy...I originally was on Tamoxifen. It didn’t bother me at all. So maybe taking it for your ER+ cancer wouldn’t be a bad idea...😀...let us know how this new protocol works for u! 😀
For those of us who are premenapause, Tamoxifen is often first line treatment when we have an E + breast cancer. For those of us who are postmenapause, it is sometimes used after an AI and Faslodex fail us. I was post menapause when diagnosed at stage IV in 2004--got almost five years from Letrozole, then over 9 from Faslodex and am now on Aromasin, can't remembe r it's other name at the moment, and have been told that Tamoxifen will probably be next.
Thank you so much for your reply. All info and suggestions are so much appreciated. I am going to start on Tamoxifen and Joe Tappen's protocol. I will have scans again in five months when we are back from Palm Springs. Praying for you and all these wonderful ladies. Love and hugs to all.
This is encouraging news as I was only diagnosed in June. I’ve been on Letrozole and Ibrance for a month. Off Ibrance for 2 weeks because of low blood counts. Currrently living in Alabama relocated from Georgia. You ladies mean so much to me. Thank you for sharing so openly. God Bless.
What mg CBD do you take? I’ve been on liquid 125 but have been advised 500 mg caps.
Hello, I am going to take 25mcg of the CBD oil. I am going to follow Joe Tippens protocol once we are in Palm Springs. I like the idea of caps. Have you noticed any difference on the CBD oil? Wishing you the very best. Hugs.
Medical insurance in Canada
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Results are back from Oncotype DNA test.
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