So OMG

[Scandia68]

Just got home from celebrating, we have NED. As in nothing!! We went through scans with a fine tooth comb (of course I wouldn’t trust a qualified radiologist) and there is nothing there other than scarring. So relieved and totally believe this is treatment plus diet. She was not totally happy with some of my supplements but I am xx

[laurac1014]

Totally awesome ! so glad to hear such great news !!!

[Scandia68 in reply to laurac1014]

Thank you, I just can’t get it to sink in x

[laurac1014 in reply to Scandia68]

I think that's natural because of the Nature of this Beast. So Enjoy this great news and celebrate.

[Hidden]

That is phenomenal!! Congratulations! That's motivating for all of us to hear. Can you refresh my memory and remind me what meds and supplements you took? ❤️

[Scandia68 in reply to Hidden]

On ibrance and letrozole. Then added Berberine Claritin, aspirin 75 , odus choice super 8 , aloe Vera drink 2 x 30 ml and calci/D the only thing oncologist not happy with was Curcumin.

[Hidden in reply to Scandia68]

Thanks! I'll check on the odus plus. It works....don't change

[Maludagui in reply to Scandia68]

Good news 🌺💕💃🏽 God is great.

I take curcumin too 😳

[Wintervt in reply to Scandia68]

Wow! So happy for you! ♥️

Do have Claritin, the allergy medicine on your list?

[Nmartinez15 in reply to Scandia68]

I take curcumin too. My onc said that I am wasting my money, but I dont care. I still take all my supplements every day and meds, radiation. My results was not progression past month so I will keep my supplements too! Congratulations!

[blms in reply to Nmartinez15]

Good for you!!! So far I have been NED for a year and go for scans next week. I have been on only letrozole since October 2018 . I take curcumin as well plus drink a mix or ginger root, turmeric root and cinnamon stick as a tea- really good. Plus many other vitamins. For now I’m staying off Ibrance to give me bone marrow a break and hold off future leukemia as long as possible. I do not buy into the fact that diet and complimentary things don’t help. It’s about your immune system doing what it was meant to do !

[Nmartinez15 in reply to blms]

I do tea with ginger root and cinnamon stick too. I didnt use tumeric on my tea because it too strong or maybe I am wrong. I like the spice of ginger and help me to sleep. I wish I can take only letrozole but my doctor want me to start with ibrance next month. I did take ibrance in may but put my white cells count very low and she told me to stop. The Ibrance give horrible headaches and make me feel extremely tired and weak.

[blms in reply to Nmartinez15]

Yeah Ibrance beats the heck ut of you.

Yes, I thinkyou are wrong about the tumeric root being too strong. The three together are really nice, try it. slice the tumeric root thin as well as the ginger root. Don;t bother with the tumeric powder.

[Nmartinez15 in reply to blms]

Ok I am going to get tumeric roots today to try. I use tumeric power only to make yellow rice!

[blms in reply to Nmartinez15]

the root is much better in the tea, unless you are making the golden milk. I do occassionally make that as well but I make it with water instead of milk normally. I prefer the root mix. Let me know.

[Scandia68 in reply to blms]

Good to hear you are also doing well. In the UK they won’t allow you to go back on ibrance if you stop for any reason even NED

[Becca65 in reply to Scandia68]

Hmm we can here - if I have to take again it will be third time. I only on letrozole right now.

[Terilyn12]

That is SO awesome 👏🏼 ... so happy for you ♥️

[Rbeth]

Wow. Where was your Mets and what meds did your oncologist have you taking. I am on Ibrance and letrozole and the letrozole is giving me daily diarrhea and intestinal pain. I also had my stomach resectioned. Gastrojujunostomy in August.

Fulvestrant stopped working at 4 months. Reenie

[Scandia68 in reply to Rbeth]

I was only given ibrance and letrozole plus monthly danusomab

[BakeryBetty in reply to Scandia68]

Letrozole gave me the worst IBS. Anastrazole was much better. It didn't work for me but it might work for you. Letrozole is awful.

[Nmartinez15 in reply to BakeryBetty]

I am on letrozole only for now. Next month will start Ibrance again lower dose. My only side effects is horrible tiredness and pain in my joint and bone. If your getting IBS with constipation take plant base magnesium 2 every day

And you will see that works!!!!!

[LeeannW710]

Awesome news! Worth celebrating!! Congrats!

[Barbteeth]

This is what we all want!!!

Congratulations

Barb xx

[Scandia68]

For now I will be happy and build my strength for when I need it later on . Xx

[Francesca10]

Omg!!!!♥️♥️♥️So happy for you

[strong2018]

This is awesome news!!! So happy for you!!

[MyMiracle13]

So HAPPY for you! God is good.

[Marieleb]

Amazing news . Enjoy!

[Pollingxx]

Fabulous x what diet please do tell

[Scandia68 in reply to Pollingxx]

A very low Sugar diet, and I only eat between 1 and 7pm

[kduck in reply to Scandia68]

Great news! Will u continue on the same treatments?

[Nmartinez15 in reply to Scandia68]

Are you doing intermittent fasting?

[Scandia68 in reply to Nmartinez15]

Yes

[Mindysooty in reply to Scandia68]

Fantastic news for you. Congratulations. Also gives the rest of us hope. Ive just started the intermittent fasting. Im doing 16/8. Also trying to eat a good healthy balanced diet and doing less carbs and sugar/higher protein but without obsessing. X

[Moon-and-Stars]

Excellent news 💃

[Justme153]

So happy for you!!! Such great news!!!

[Liz1955]

So happy for you!!!

[Gaily71]

This wonderful news congratulations!🎊🎉

[Hidden]

Well done! That is wonderful news.

Sophie

[hopenowandtomorrow]

Fantastic news! So encouraging to hear! All the best!

[Selmac]

Thank you Jesus. I'm so happy for you. I wish all of us could hear those words.

[mariootsi]

Omg! That's amazing! Congratulations and continued ned for a long long time!

[Godbeforme]

Praising God for your wonderful news! God bless you and heal us all in Jesus name, amen! <3

[RLMB in reply to Godbeforme]

AMEN!!

[Katherinelopez]

That’s great ! What type of diet are you doing ? And what supplements if you don’t mind me asking

[Scandia68 in reply to Katherinelopez]

Low GI diet

[Barb5]

Congratulations that is great news!

[lashinator]

Amazing! Keep doing all the good stuff!!

[lynnhbtb]

FAntastic!

[RLMB]

So very happy for you! Such great news!!

[Survivornow]

So awesome! I am reading more and more about MBC patients with no evidence of disease! I'm praying we all get the same great news!.

[LouisaMay]

That is great news, I'm really happy for you, in fact this has made my day.

I too am on Letrozole and Ibrance and have been dithering as to whether or not to take turmeric and berberine. This article was the best information I could find and sits firmly on the fence!:

drjacobschor.wordpress.com/...

Clearly, neither the turmeric or the berberine have stopped Ibrance working for you so I think I will go for it too. I am also getting used to intermittent fasting and a low GI diet.

Sending good vibes and best wishes - may your NED last a very long time indeed xxx

[Scandia68 in reply to LouisaMay]

I only took Berberine for a short while so I don’t think it’s part of the good results but I’m continuing with it. If anything it is diet change low GI and intermittent fasting.

[Pollingxx]

Where was your secondary x

[Scandia68 in reply to Pollingxx]

Pelvic bone

[Hidden]

Fantastic news! Thanks for sharing!

p.s. You've inspired me to increase the duration of my intermittent fast and I just ordered Claritin and low dose aspirin!

[1998withStage4]

Totally awesome! I've never had clean scans. I jump for joy just to hear the words "stable disease."

[Libra48]

Awesome news! So happy to see the drugs are working for you! Thank you for sharing! I recently had a scan and got good results as well. I’ve been on Ibrance and Letrozole four months.

[Kimr2081]

That is freaking awesome!! Enjoy and I am so happy for you!!!

Where were your mets?

[Scandia68 in reply to Kimr2081]

Pelvic bone

[Sunnydaz]

Wow! Awesome news! I’m so happy for you xo

[kcc9993]

Congratulations! For the turmeric mentioned, also a form that is hydro-soluble absorbs better.

[Becca65]

This is awesome - take this you rotten cancer cells!

[Staysha]

Wonderful news! That’s what we are all striving for. You go girl!