I saw my oncologist this afternoon (She was running an hour late! My GP was 40 minutes late when I saw her last Tuesday and when I had my zometa infusion on Friday I had to wait about 45 minutes!) to get my latest CT scan results. This is the fourth consecutive post-treatment scan where I have been stable, so that is good news.
I asked lots of questions, and wanted to know if the tumours had shrunk. She said the metastases in my bones are so tiny that it is hard to measure them, and then I asked about the breast mass. She measured it and it has shrunk. I also decided to bite the bullet and ask about ibrance and why I had not been put on it when I first started treatment. When I told her I had read that it doubles progression free survival when combined with letrozole she agreed, but then said it wasn't offered to me to begin with as it's not generally given to pre-menopausal women when they start treatment. Oh, and money was an issue! I knew that had to have something to do with it. If I had known that sooner I could have gone private and got it. I was a bit irritated when I heard that. She said she hopes I will be on letrozole for many years to come, but the second line of treatment will probably be faslodex.
My oncologist had in her hand a copy of the letter sent to her by the COC doctors in London. While she did not tell me to stop the protocol, she was not in favour of it. She said there is "not enough evidence", but that "it could work" and would not cause any harm. I told her I am willing to give it a go and see how it goes.
Anyway, that's about it. I feel happy that I am continuing to do so well, but I just feel so emotionally drained right now. I have had five appointments so far this month, with one more this Wednesday when I travel down to London to meet Dr Callebout.