I started following this forum and can’t believe I didn’t know about this site before. You are all so kind and supportive and I am grateful for the opportunity to join in. I had BC in 2017 and was told it had affected some of my lymph nodes. A year later I had a bone scan and they discovered I had a bone met on my pelvis. I stopped tamoxifen and went on to ibrance, Letrozole with danusomab injections once a month. The fear is constant especially every 3 months when it’s time for the CT scan but hopefully it will get easier. We went and saw Dr Stebbings in London and when my daughter asked if there are other things we can try if this fails he said there are another 20 things to try and not to worry so I’m trying to take this onboard and stay positive.
Written by
Scandia68
To view profiles and participate in discussions please or .
Thank you so much for the warm welcome. Another thing they said to me is that as the scans are now so advanced they are picking up on things that before we would never know about and would live with for years unknowingly. I hope this is true
Hello 🌺🎀 This group is wonderful We support each other in all our doubts. I'm happy to have found it. Do not hesitate to share any concerns you have. And the most important thing is to have a lot of faith that we are winners 🌺😍💕
I take Ibrance Letrozole and Zometa also and have been doing so for 3 years and 4 months and still get nervous with every 3 month scans and still “mourn” at times but there are many days when I feel like fighting this thing with everything I have to beat it. I hope some day I can say I’m cured even though I might be dreaming. Cancer can’t take my dreams by gosh 🤣🤣🤣
I am on denocimab and all same drugs as you are on as well. My onc also said the same. Not to worry if it stops working. There are plenty of other options. Wow. I’m getting a little better at not worrying. But still have my moments.
We just gotta bite life on the bum and keep believing we will be looked after. In what ever way that is, huh?
Welcome!!! I also had bone Mets, I’ve been on ibrance and letrozole for 3 years and currently no cancer is showing up anywhere so hopefully you will have the same results!!! Looking forward to hearing more about you 😃
Welcome. It is wonderful that you found this site. Remarkable women always ready to lend an ear and encourage each other as we maneuver this maze called mbc.
Welcome to our little club. We are here to support each other and share our experiences and just vent when needed. I know there are alot of options out there so we have to trust our doctors that they will lead us down the right path.
Welcome to our group. The support and love that is shared is just what we each need at sometime. Feel free to vent or shout with joy, it's all accepted!!!
Sorry you are joining us here but am so glad you are. It took me a while to find this group also and I have stayed with my sister warriors here. Wonderful amazing fighters💕finding them and listening, feeling , sharing has opened me up more and made huge difference in my life. This is my third year with mbc to bones and lungs; currently on ibrance, faslodex and xygeva. I am not stable yet or I should say the beast isn’t but getting there.
Before I came into this site I was more down than up. My days now I feel I am present totally for all those I love and share life with.
Today was draining for me— my daughter in laws father passed away Monday night. I worked every day and was there for my son and grandchildren, daughter in law, my daughters. Today was the funeral mass and burial. Cried my heart out for that man and the figure he is to all of us. A good man, not proud but humble and grateful for simplicity and family— loved his family and extended families. Today was so sad but I am grateful- deeply grateful to be there for those I love so much. That is a gift.
I hope that for each of us, and for you that we have more days of truly feeling that gift of life we have; the beast will never win.
Thank you for your warm welcome I am finding this site such a relief. I’m sorry you have had such a rough day and also very sorry for your loss. You are right, to be there for those we love is definitely my constant priority for as long as I can x
Hello, Scandia! I had BC diagnosis in 2000 and was "cancer free" for 17 years. Of course, it was hiding out somewhere and reappeared in 2017 with mets to my spine and one pelvic bone. There's been so much research since I was diagnosed those many years ago; and I feel so lucky (despite the MBC now) to hopefully have other alternatives when a particular treatment stops working. Sounds like you received great encouragement from your London oncologist. God bless you! XO Linda
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Newbie Here with CA 27.29 Question
Hi newbie here
Hi Everyone i'm a Newbie with Mets to Bone , Lymph Node and Liver?
Newbie MBS in bones. Has anyone tried Reishi or Cordyceps? 
possible explanation for jaw issues with Zometa...
