IV Vitamin C Therapy?: Hi friends... - SHARE Metastatic ...

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IV Vitamin C Therapy?

MacroMom profile image
8 Replies

Hi friends! Wondering if anyone has supplemented their cancer care with IV VItamin C therapy. I work with an ND oncologist along with my regular one and she suggested it. If you have used or are using it, how often and at what dosage? Did you have any side effects? I'll let you know if I start. Meanwhile I had second round of Faslodex shots today so I'm going for a walk to move the gunk around!

Patty

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MacroMom profile image
MacroMom
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8 Replies
Barbteeth profile image
Barbteeth

Hi Patty

What is the benefit of IV Vit C?

I don’t think it’s popular in UK

Barb xx

mariootsi profile image
mariootsi

Patty, there are alot of naturopathic docs who believe that high dose Vit. C is worthwhile with cancer. My onc doesn't agree with any these treatments. But I do. Good luck if you decide. Would be very interested in your results. My onc says Vit. D is important. 1000mg everyday. That's about it!

GollyG profile image
GollyG

Hi Patty, Did you decide to go with the IV vitamin C? Just considering it myself... Thanks, Gill

MacroMom profile image
MacroMom in reply to GollyG

Not yet Gill, I'm waiting for my labs next week. The Xeloda dropped my CA 15-3 a lot the first month and I want to see if that continues before adding another therapy. I'm still debating about IV C. It's quite a commitment of time and money. I do think it can improve energy and quality of life but I'm feeling great right now and would rather not spend another day at a doctor's office!

Bailey3266 profile image
Bailey3266 in reply to MacroMom

Re: CA 15-3:

My new ONC only draws one of the two markers as he says they’re the same-?meaning they go up or down together?? Any insight? Also he moved my CT scans to every 4 mos vs 3; which I freaked out about but then thought we’ll only 3 xs/year with my terrible “scan-dirty” that’ll be blessing in disguise...now I just gotta ditch the appt to see him every 2 mos; once with scan/bloodwork the other visit without (which is appt I’d like to ditch); I’d still do bloodwork! Thx for any input!😍

GollyG profile image
GollyG

I hear you! Thanks for response. I'm lucky too in that I feel well at the moment and my disease is stable - just contemplating another line of attack!

MacroMom profile image
MacroMom in reply to GollyG

I agree! I was surprised when Ibrance didn't work and initially felt overwhelmed at the treatment choices and urgency. I don't want that to happen again. But it's also hard to spend too much time on research when I'm feeling good and hoping Xeloda will work a long time!

MacroMom profile image
MacroMom

That's helpful clarification, I wondered why some get the CA 27-29. I didn't have a prior history so have the CA 15-3 and the CEA, which doesn't seem as helpful or accurate as the CA 15-3. Regarding scans, I'd been getting them every 6 months but will probably move to 4 since the liver mets took off last spring.

About scans...I often see friends here referring to PET scans. I've only ever had CT's, and my oncologist said they don't use PET often. I wonder PET scans are more common with early stage or other cancers?

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