Bone Scan and CT scan good: I am so... - SHARE Metastatic ...

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Bone Scan and CT scan good

56 Replies

I am so relieved that my bone scan after one year shows no major changes. A few spots in my bones have improved and a few have gotten a little worse but in general there has been no profession. My Ct came back clear which was a great thing as I was having new pain to my ankle and some breathing problems and I was scared. I am nervous to be happy for this as it’s always in the back of my mine how quickly it could change but grateful for one year under my belt.

56 Replies
nstonerocks profile image
nstonerocks

Fantastic news, Sarcie! Now you can exhale and celebrate

in reply to nstonerocks

Thank you.

That is really good news, Sarcie! I think you should celebrate!

Sophie ❤

in reply to

To be honest I’m scared to celebrate the good things in case I jinx myself.

nstonerocks profile image
nstonerocks in reply to

Let your fears go and celebrate. If not now, when?

in reply to

I know it's hard to view a good CT scan as reason to celebrate, but I always do! I view it as a victory. After one of my post-diagnosis CT scans last year my husband and I asked my oncologist and her colleagues for recommendations for places to go eat. I didn't think I would have anything much to celebrate after my diagnosis, but hearing that treatment is working and feeling better physically and in other ways really is cause for joy and a good reason to celebrate. Just remember the physical benefits to your body when you are happy. It will make such a difference and boost your immune system.

Sophie x

in reply to

I do try but my depression has kicked in this winter and physically I haven’t been feeling well die to my hip being destroyed by the cancer. I had my hip replacement and still recovering from that. When I can walk again like a normal person it will make a big difference. I am just so exhausting and I don’t know if it is the Ibrance or my pain meds or the combo.

in reply to

Sorry if I come across as Miss Chirpy Chops all the time. It must be rough recovering from the surgery. I hope that you soon recover and that you will notice a marked improvement in your mobility. It sounds like hip replacement surgery is quite major surgery, so what you are feeling is probably to be expected until things settle down. I hope the painkillers are working so you can get through each day successfully. x

in reply to

You can be Chirpy any time (love the name) as we all need it. ❤️

nstonerocks profile image
nstonerocks in reply to

How about a facial, a manicure, and maybe a massage that doesn’t include the hip area? I hate to sound preachy but do you juice greens? It gives me an noticeable boost

in reply to nstonerocks

All those sound like a good idea. I have never done juice greens. What exactly is it?

nstonerocks profile image
nstonerocks in reply to

Do you like leafy greens? It helps a lot when you juice greens like spinach, chard, kale. A juicer is an investment. Around 200+ for a good centrifugal juicer. There are lots of combos. My go to is a head of kale, half to whole cucumber, a lemon, about an inch of a pineapple. You can juice just about anything. The ideal ratio is 3 veggies to one fruit. Pineapple adds some sweetness and has digestive enzymes. Some people do apple or pear juice. Kris Carr has a book on juicing and making smoothies. She has some free recipes onsite and you can google juice recipes and come up with more. If you are not ready to invest in a good juicer, then a nutribullet type blender (or if you want to go luxe, a Vitamix) can make great smoothies. I usually use orange juice, greens, some berries and might add with Acai or Goji berry powder for antioxidants. I sometimes throw in flax or hemp seeds. I also keep powdered greens on hand, "Garden of Life Perfect Food Super Green Formula" is one. I add a dollop of yogurt. I do use some dairy, although I've cut down on dairy a lot. There are all kinds of nondairy yogurts out there. And you can use Almond milk instead of orange juice. Even my husband, who is far from a "health nut," swears he feels the energy after he drinks a green juice. Really helped me during chemo. I think it helped greatly reduce the neuropathy.

Barbteeth profile image
Barbteeth

Hi Sarcie

Marvellous news

I’m hoping to get to my one year without progression

Barb xx

in reply to Barbteeth

I hope the same for you.

mariootsi profile image
mariootsi

Omg. That's wonderful! Prayers for continued good scans. Celebrate! Love, Marianne

in reply to mariootsi

Thank you.

Thank you. I’m trying to enjoy and not worry ahead

mariootsi profile image
mariootsi

Scan anxiety is all too real! It shakes me to my core!

Onie54 profile image
Onie54

Great news, moving in the right direction! As I keep reminding myself and as others remind me as well, no matter how small the improvements are as long as they are in the right direction it’s a reason to feel good and celebrate 🥳

in reply to Onie54

This is very true. Just somedays it’s harder than others.

Onie54 profile image
Onie54 in reply to

I totally agree....

Mimigram profile image
Mimigram

Great news!

in reply to Mimigram

Thanks.

Yes Sarcie! Congratulations!! Enjoy this good news. It will always be in the next back of our minds, but we must try and leave it there....waaaay back! We're here now, living for today.

in reply to

So true. Thanks.

PLASEM profile image
PLASEM

Thanks God it is really a relief, I am happy for you God bless you

in reply to PLASEM

Thank you.

barbarac76 profile image
barbarac76

Great news about your scans. I'm so happy for you!

I can relate to your fear about not wanting to celebrate for fear that things may change. I have lived the last five years always lowering my expectations (so that I won't be disappointed about bad results) and worrying about the next scan even when the current scan is good. It's been a terrible waste of time and energy. Don't be like me. I hope you celebrate your good news.

in reply to barbarac76

Thank you. It is really hard to live in the now. I try but some days it just doesn’t happen.

Have-faith profile image
Have-faith

Great news and we appreciate that you shared this! Keep up whatever you are doing to stay strong!

in reply to Have-faith

Thank you. I hope it brings some strength to others.

Have-faith profile image
Have-faith in reply to

Absolutely it does!

kduck profile image
kduck

Great news!!

in reply to kduck

Thank you

Nananewf54 profile image
Nananewf54

Great news.. After 3 months my lungs improved but the bones had worsen. Still on Chemo ibrance 125 mg .. Will know more on the 12th off Feb..if Onoligist will be treating me for my bones ..

in reply to Nananewf54

For my bones I still just take Ibrance and Letrozole. I had radiation to my hip and neck a year ago for pain. Maybe the bone lesions were already there and have just “come to the surface”

Kimr2081 profile image
Kimr2081

Sounds like a victory in my book and try not to worry about the future. It is promised to no one. I know easier said than done and I have to remind myself. Take care and congratulations on being stable!!!

in reply to Kimr2081

Good advice. Thank you.

Awesome news, Sarcie! : )

in reply to

Thank you

LisaT23 profile image
LisaT23

Great news! celebrate!

in reply to LisaT23

Thanks

SeattleMom profile image
SeattleMom

Congratulations Sarcie!! GOD BLESS YOU!! 🙏🏻❤️🙏🏻 Linda

in reply to SeattleMom

Thank you.

Kelly001 profile image
Kelly001

That is great news! So glad to hear it! I too just had my CT Scan after 9 months & my liver tumors had shrunk 56%. I was so happy that the Ibrance/Falsodex combo is working. One day at a time! Happy for you!😀

in reply to Kelly001

That is awesome news. Congratulations.

DinNorCal profile image
DinNorCal

Sarcie, wonderful news on your scan. I, too, relate to how hard it is to be “happy” and celebrate each positive scan result. This cancer is a moment by moment battle. As others have shared, we need to fight hard and it sure is wearing. I’m so grateful for the encouragement and shared information in this sight. We truly do understand how hard it is living with this.

Did the radiation help with your pain?

Take care and try to have a joyful day. 🙏🏼💗

Debbie

in reply to DinNorCal

The radiation helped my neck (although the mouth and throat sores were so bad it was over 6 weeks before I could eat normally) but in my hip I found no difference.

DinNorCal profile image
DinNorCal in reply to

I was considering radiation for a new, very small tumor in T3 spine, where they radiate through the front, but when the Oncologist mentioned it could cause problems in my esophagus I opted not to radiate. Did they do the neck radiation through the front? And we’re the sores from the radiation? Sounds miserable, but glad it helped your neck pain.

in reply to DinNorCal

Yes mine was from the front and yes the sores were from the radiation

Wintervt profile image
Wintervt

Happy to hear your good news!

Sending love!

in reply to Wintervt

Thank you.

I wish somebody had told me as I would never have had it if I had known the side effects. It was brutal.

DinNorCal profile image
DinNorCal

Thanks Sandra for that very knowledgeable answer. I too am glad I opted not to do the radiation in that area. My pain was actually lower than the T3 area, so that did help with the decision. I have had Endoscopy for Gerd, so why agrivate it more. And me too....love to eat 😉

Debbie

BuoyantCat profile image
BuoyantCat

I am so glad to hear the good news. Every time mine comes back with no change I feel I can breathe again. Good going!!!

in reply to BuoyantCat

Thank you. It’s a tough life we live but we are living.

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