N. E. D. on Ibrance

[pinkeins]

I truly appreciate the information and sharing on this page. I had cancer 12 years ago,, had a double mastectomy, removed the sential node. In October of 2017 I found a pea-sized lump under my right arm. Biopsy showed breast cancer had returned. Scan showed breast cancer in my liver, metastatic. My oncologist started me on ibrance and letrozole. The cost of the ibrance is terrible, but I decided to take it. I had a scan 2 weeks ago and was very surprised to find out that I was nearly in remission. They will not say remission they only say no evidence. I have to continue on ibrance to stop any relapse. I give credit to this near miracle in my life to a huge number of people praying, a good diet, some exercise, and CBD oil. I pray for all of you.

[Bobbie86]

Hi. How much cbd oil do you take please? My mum on ibrance 100mg and letrazole regime and I’m interested in getting her onto cbd aswel x

[pinkeins in reply to Bobbie86]

I take the drops that are 43% cannabis. I take 5 drops at bedtime. 3 drops after breakfast and 3 after lunch. The brand use Charlotte's Web advanced formula. Praying for you and your mom.

[Bobbie86 in reply to pinkeins]

Thanks very much. Here in the health shop it seems to come in mg. I will have to look into it. Prayers to you too x

[Cshipley123]

My copay was over $1000.00 and the drug company pays that so I do not pay anything. I know I had to qualify. I would ask your doctor's office as mine was the one that started the process. That is great news about your scan!

[pinkeins in reply to Cshipley123]

Thank you. I anyone Medicare and they turn me down.

[pinkeins in reply to Cshipley123]

Thank you. I did qualify with my oncologist 's help. Praise God.

Motty AZ

[Hidden]

Fantastic! Congratulations!!

[SeattleMom]

Hello, pinkeins!

Your story is so similar to mine. I was diagnosed with BC in October 2000. No evidence in 3 sentinel nodes that were removed. I still opted for double mastectomy, due to the young ages of my children (7 and 10). Seventeen years later (November 2017) I discovered small lump in my right armpit and MBC subsequently found in spine and one pelvic bone. My protocol since that time has been ibrance, letrozole, and a monthly injection of xgeva.

I would strongly suggest that you talk to your oncologist about getting your ibrance covered by Pfizer (the manufacturer of the drug.) I just talked to mine about the cost this past month and she was floored that I had ever paid ANYTHING for the drug. She said that Pfizer is extremely accommodating in its help to women with MBC. They have an online application to get you started; you can deliver this to your oncologist (it requires his/her signature) and get the process started. Good luck with this! XO Linda in Seattle

[RLN-overcomer]

Sister/Warrior/Over-comer: C*o*n*g*r*a*t*u*l*a*t*i*o*n*s are surely in order,on your NED results. May the God we serve grant you 11 plus more years, as we pray the same for our sisters/warriors who are looking for the victory, of no progression, NED=No Evidence of Disease, and more importantly for a permanent cure Amen. Do celebrate with dancing clapping, shouting, and making a joyful noise sister/over-comer. Yesssssssssssss I am giving LORD/GOD praise.

[dlaizy]

Hi my name is Ewa. My friend just started her treatment with Ibrance+letrozole. Are you still on it or they stop it and started something else?