Severe canker sores with Ibrance - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,549 members8,103 posts

Severe canker sores with Ibrance

Cocorei profile image
10 Replies

I’ve tried almost every over-the-counter and dexamethasone and magic mouse any other ideas? It really is difficult to go back-and-forth on the cycles of Ibrance. Anybody trying a lower dosage or an alternate medicine or anything else?

Written by
Cocorei profile image
Cocorei
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Debdavenpo profile image
Debdavenpo

I was only on 75 mg and didn’t have that issue. I’m surprised the dexamethasone mouth was didn’t work. Maybe you do need a lower dose. Canker sores are awful. I did get this stuff for another treatment that if you can reach them easily and you don’t have a Ton it’s a dental paste

webmd.com/drugs/2/drug-7528...

I had my dentist call it in. Works really well if you don’t have an entire mouthful. Hope this helps. Hugs. 😊

JulSoul profile image
JulSoul

I take a L Lysine daily. When they get really bad I rinse out my mouth with coconut oil. This information was from the health food store, not the doctors. It really does seem to help. I am on 75 mg of Ibrance. Now I have to take it every other day because of my counts.

Cocorei profile image
Cocorei

I’m at 125 mg 21 days on 7 off. Were you always on 75 mg or did they dose you down

JimmyStewartHarvey profile image
JimmyStewartHarvey in reply to Cocorei

I am supposed to start Ibrance soon and dr is starting at 125mg. A little scared..

Are you still on Ibrance and 125mg?

SeattleMom profile image
SeattleMom

Hi, Cocorei!

Here is my morning and evening regimen if I feel any sign of soreness in my mouth:

1. Rinse with Plax for 30 seconds: amazon.com/gp/product/B015M...

2. Brush teeth for 2 minutes with Arm & Hammer PeroxiCare toothpaste: amazon.com/Arm-Hammer-Perox...

3. Follow up rinse for 30 seconds with Listerine Zero Alcohol mouthwash: amazon.com/gp/product/B012O...

Hope you find this helpful! It is my go to regimen; have had no problem with mouth sores for 8 months.

XO Linda

Cshipley123 profile image
Cshipley123

Ask your doctor about Gelclair. It’s new and expensive but the company offers assistance. I didn’t pay anything for my medicine. It really works and fast! It’s the only thing that works for my canker sores.

Petreep profile image
Petreep

I’m having problems with canker sores and other mouth sores with ibrance. I was just taken off the 100 dose for the next week and more blood tests next week to see if they will lower to the 75 mg dose. So I’ve been off the meds more than I’ve been on, which worries me. Glad to hear about some remedies others have used.

kkrouse profile image
kkrouse

I just had the first really bad sore. It’s taken 3 weeks to heal, and I’ve been told to delay starting this cycle of Ibrance til Friday, to be sure it’s healed. The mouthwash worked for the pain to a point. I’m going to try your patch if I get another. Thanks

tmills64 profile image
tmills64

If I get fever blisters or sores in my mouth I take valtrex it is prescription meds for herpes simplex or fever blisters, it clears it right up.

Merma profile image
Merma

I use MuGard and Dexamethasone (the 2nd is prescribed)

You may also like...

Ibrance and Mouth Sores

I get mouth and/or tongue sores every month on Ibrance - i've tried everything - the prescription...

Mouth Sores from Ibrance

they could lower the IBrance dosage and she said they have not lowered the dosage on any IBrance...

To be on Ibrance or not?

it came back. My oncologist back in CA put me on Ibrance after surgery and radiation - Ibrance...

IBRANCE

diagnosed in February stage 4. Am wondering if anyone else is experiencing deep exhaustion from...

Ibrance and supplements

vitamin C, and I try to compensate everything else from food. I am 69 years old and use Ibrance...