Beautiful and Stronger Together

[Kakoburr]

I am new to this group though have been fending off metastatic bc for years and bc in general since 2003...What strikes me most already is the amazing capacity of the participants to embrace one another and hold each other up with loving kindness. It inspires me to pitch in: I have been looking for ways to more actively support others on the journey as I am doing well after mets to brain and lungs and bone. Aside from feeling gratitude for the love and beauty in our lives, despite the struggles, I also think eating well, getting out in nature and exercise are key factors in thriving!

[Burgerde]

I second your thoughts. I had breast cancer, stage 0, 11 years ago. Last August I was found to have s metastasis in my eye! On routine yearly eye exam and then multiple mets to brain , lungs, liver, bones and skin. It has been a hard year. Now on Verenzio and Faslodex and just had 3 month scans which I should hear results of this week. I try to keep positive but hard. I try to stay active. I hope to be able to finish the last 3 Adirondack high peaks I have left this year. I have always been an active person and nature is part of me. We all need support and love during our road forward with MBC. I send my love and support to all traveling this road.

[Rhwright12 in reply to Burgerde]

That’s awesome! And good luck with the hikes! I’m jealous! Sounds like so much fun...I love the great outdoors myself...I have a few 5ks planned for this summer....

[Hidden]

Well said - it is a wonderfully supportive site. I have been stage 4 since early 2014 with mets to liver which have continued to progress slowly despite treatment with Letrozole, Xeloda, Navelbine and Faslodex (we do not have access to Ibrance or other CK4/6 inhibitors here in South Africa unless one can afford to be on the highest medical aid scheme and even then there is usually quite a hefty co-payment). So right now I am having no treatment at all. My oncologist says the next step will have to be debilitating chemo and as I am basically asymptomatic - no sign of cancer except in the scans and blood tests! - I may as well enjoy a better quality of life while I can. Unfortunately my usual walks have been rather curtailed since the Letrozole gave me arthritis in my ankles and feet which is a bit of a problem but try to do some stretching and yoga, love my garden and we do try to spend as much time camping in the Kruger Park as we can when it quietens down after the northern summer influx. So long may it last. And long may we all enjoy this great support - it has been invaluable during my darker hours

[Rhwright12 in reply to Hidden]

Prayers that your current treatment will do its job...Enjoy your normal summer camping outings! I truely believe in staying healthy active and eating right!

Be blessed!

Sending prayers!

[blms]

I agree and add acupuncture, Chinese medicine, tapping and imagery along with critical breeding to that list. It’s a lot of continual work ladies! For all the effort is worth the time we can spend with their families and enjoy a beautiful sunrise and sunset, to see the beauty of the clouds and all of God‘s nature Is so refreshing and revitalizing. Thank you ladies for all of who you are and what you represent and the support you give each of us continually

[Kakoburr]

oh yes: all that restores energy and peace. Art and music, creating and enjoying also sustain us and renew us!

[Andreaer]

Happy for you to join us, for us on this journey, nothing like support and as you do good excersise, eating well, and getting your mind off this illness is key. I love to prepare Practical Life material for Montessori schools here in Argentina, which are growing in number around my country, so that keeps me busy and happy, also I’ll be a grandmother in November, so... Sooo lookingforward to that new experience!! Well welcome to this wonderful group of so many precious people and all the best!

[Kakoburr]

how wonderful! Our children flourished at Montessori here: love the approach. What better inspiration than GRANDCHILDREN! Hooray!

[lashinator]

Staying with your highest quality of life is most important. Sometime side effects fade after you are on a drug for a while. The Letrozole might ease up and your hiking can resume. Chins up and best of luck

[NPmary]

May l ask, what was your treatment? How did you recover from brain Mets?

Thank you.