Thoughts

[Hock15]

Hi everyone, I just found out I have a new spot on my pelvis. I had it on my L4 vertebrae before this. I have had 3 rounds of ibrance and on the Faslodex shots. My Dr. wants to keep me on those but wants me to do another stereotactic radiation again this will be my 2nd time for that but 4th time for radiation. Any thoughts?

[marianne88]

Radiation is the best thing to do. Get it to shrink before it has time to grow. Stay strong 💕

[Hock15 in reply to marianne88]

Thank you. I’m just afraid I’m going to turn into a walking glow stick lol.

[Partia]

My 2nd go around with breast cancer...now Stage VI. Never had radiation before. Sorry

[PJBinMI]

There are oncs who believe that mbc involving a very small number of bone mets is sometimes curable, using stereotactic radiation. U of Florida advertises that. That said, I was diagnosed with denovo bone mets in spine, pelvis, shoulder blade and a rib but have never had symptoms and have not had radiation but if I develop pain in the metty places, I would try rads.

Radiation treatment uses much less radiation than it used to and the risks are alot less than they were 20 years ago, probably even 10 years ago.

[Selmac]

I'm sorry. I hope you don't mind me posting my news here also. I found out Friday the Ibrance and Faslodex are not working for me. Cancer is all through my back. Spine, ribs and shoulder bones. No organs have been affected. The Oncologist is trying a different chemo pill. Don't remember the name. There will be 2 pills. They are working out the details to see if it is covered under my prescription plan. I thought seriously about stopping treatment, but my husband doesn't want me to. He will honor my wishes but he still gives his input. Sorry to take over your post Hock 15. I've never posted on my own and don't even know how. I'm sorry about your results. I try to keep track of the people by name that I have responded to and pray for them.

[Hock15]

Hey Selmac we are all in this together. For now my dr wants to keep me on the two drugs and stereotactic radiation. Please let me know the other pills when you can. Thank you and cyber hugs

[Sheila100856 in reply to Hock15]

Good morning Selmac♥️

I was diagnosed feb 9 2016 with MBC meta in the spine and pelvic.

I have just looked at my scan for the first time since Being told that I was stage IV😢I was also told that the cancer was in my body for apps 13 months from time of diagnosis!

That’s a total of 37 months of living with cancer!

Two of those months we know that I was stage IV mets of the 🍖

Bone.Tumor marked are good labs are good and waiting on results from my current scan🙏

The first year I found it hard to believe because I felt so good even this past year my only complaint is 30 pounds and joint pain🤣The more I move and the more water I drink the better I feel🐞stay strong please consider staying in treatment I xs use a friend Your new Mets sister Sheila

[Selmac in reply to Sheila100856]

SheilaandRob

Thank you for your words. I also was stage 4 for over a year before they found it. I am going to try this drug and see what happens.

[Selmac in reply to Hock15]

Hock 15. The drug is called Affinitor. I think I will take Femara with it. I've been on Famara for over 3 years with no problems. I am to go to the Dr Monday to sign a waiver and take a short class on the medication.

[Selmac]

Hock 15, I have to correct my last post. I take Aromasin with Affinitor.