Triple negative

[KCooksey1967]

I'm new in this site, try to figure it out how to use it. Looking for women with triple negative BC.

I was diagnosed January, 2017. I had mastectomy , chemo and radiation.

[Ytabnm]

Welcome. I was diagnosed the same time. My diagnosis was different than yours. Lumpectomy, radiation and now tamoxifen and Lupron.

[KCooksey1967 in reply to Ytabnm]

Thank you

[KCooksey1967 in reply to Ytabnm]

what stage were you?

[Ytabnm in reply to KCooksey1967]

I was considered Stage II, after surgery, due to the lump being bigger than what they thought. I feel very fortunate.

[KCooksey1967 in reply to Ytabnm]

I was stage 2, grade 2 as well. God Bless you!

[Mlan]

I was diagnosed with TNBC in Oct 2017. I had a lumpectomy with a reduction of the healthy breast as my breasts were very large. I was plagued with necrosis of the lumpectomy breast and needed a second surgery to remove the necrotic tissue. Needed one more flush in office to remove necrosis. Finally over a month late I started chemo. I just finished 1st stage of treatment which consisted of 4 AC(red devil) infusions ,with 1 week delay for low encounter count. Now on to 12 weeks of Taxel , then 6 weeks of radiation. Whopper! On the whole I am doing ok.

[KCooksey1967 in reply to Mlan]

I'm happy you are doing ok. What stage were you? I did 6 round of chemo, Docetaxel (taxotere) and Carboplatin then 4 weeks of radiation. I'm doing ok, after I finished all of this treatment I was getting tightness in my neck. The doctors think this is all stress related.

[Mlan in reply to Mlan]

I'm stage 1 grade 3. I had 4 AC treatments and will start 3 months of racial April 4. Then 6 weeks of radiation. Like I said I've been pretty lucky with side affects so far & hope it stays that way. I guess all we can do is fight on and keep laughing when we can & cry when me must.

[KCooksey1967 in reply to Mlan]

thank you, we keep fighting, we are stronger than BIG C and God Bless You!

[Clair19 in reply to Mlan]

I only had lumpectomy and radiation in 2001. It was small and stage 2. I had a reduction 2 years ago and no cancer. Now just 2 years later spine and rt lung. I had Doxil red devil. Now Ibrance 100mg. I wish you good health and make sure you keep on top of your health. I always thought when it returned it would be in my breast, not true all the time. Just have a scan once and again. I did not do that, I figured if mammograms where clear I was. Now stage 4. But life goes on and I’m doing good. Thanks for your post.

[Acadia]

Diagnosed July 2016. Lumpectomy, chemo, radiation. Finally feeling better after treatment. Cancer does not rule my life. But I do suffer chemo brain occasionally. Some neuropathy. Glad to put it behind me. Looking forward to the future. Hugs to you. Warrior still...

[KCooksey1967 in reply to Acadia]

thank you for your reply. Yes, I feel the chemo brain sometimes and have some homeopathy from the chemo, its all started after the 4th chemo. God Bless You!

[CancerkickerKathy]

I am triple neg too. Diagnosed in 2015. I have had bilateral mastectomies and reconstruction. I had chemo which was more to prevent the return of cancer. My fear is of it coming back somewhere else. But so far life goes on and I refuse to live in fear. Good luck to you.

[KCooksey1967 in reply to CancerkickerKathy]

Thank you for your reply, what stage were you?

[Clair19 in reply to CancerkickerKathy]

You can’t live thinking about it. I was diagnosed stage 2, 2,5cm no node involvement. Then last summer it returns, damn cancer, in spine and rt lung. I never had chemo but had 6 rounds of Doxil yes red devil. Now Ibrance. I will admit I’m scared this time but won’t let it run my life, that’s what it wants. I’m hoping my breathing gets better so I can go back to the gym. I hope you continue your great path. Prayers.

[CancerkickerKathy in reply to Clair19]

I thought I was stage 3 but my sis is saying 2. Maybe it was grade 3. I have to check my papers. I had the dreaded red devil too. I know I had one invasive ductal that was over 2 cm. They did find during my surgery one in situ. None found in lymph nodes. I am keeping my fingers crossed it stays away. If it came back to what breast I have I could probably deal with it but hitting somewhere else as it seems to do would probably freak me out. Like you said, we can't let it run our life. I hope you beat it good and it never comes back.

[Clair19 in reply to CancerkickerKathy]

Thanks Kathy. Unfortunately when it spreads to other places hard to cure, mostly manage. When I had stage 2 almost 20 years ago I never thought it would return. It’s not in my breast, spine and rt lung. I have Her2 negative which is slower growing, most likely hid in my bones until conditions were right and it went to lung. I hope you continue to have great health. Just keep up your good living and stay in touch with your body. I’m the one who found both cancers, not Dr. I learned we know our bodies better than anyone. Thanks again.

[CancerkickerKathy in reply to Clair19]

I really try to not think about it. Stressing over it will only make me weaker. I am trying to be a little more aware of what I put in my body but I am not letting that run my life either. I would rather live 5 years happy then 10 miserable. I guess everyone has their own theory. Staying positive is what works for me.

[Faithdeb]

I had a masctomy November 2015, triple negative, I opt out chemo. Margains and lymb clean. Pray everyday no recurrence.

[KCooksey1967 in reply to Faithdeb]

what stage were you? Did they find any in your lymph nodes? thank you

[Faithdeb in reply to KCooksey1967]

I had stage 2 thank God not in lymb notes clean. I did radiaion and pray everyday. ❤

[RLN-overcomer]

Greetings: Sister(s)/Warrior(s)/KCooksey1967 I was misdiagnosed in August 2006. Almost a

year later in 2007 i was correctly diagnosed with triple negative breast cancer. I was told I

would not live to see 2009 , and would live around a year, only if I went through aggressive

chemo, and radiation. Well i am thankful that Dr/God over-rode every worldly Dr's prognosis.

I am here communicating with you with NED No Evidence of Disease. I am alive because of

Lord/Gods love, grace, and mercy. I am not a survivor, I am an Over-comer, and I pray for a

NED outcome for you. God bless you as you navigate this journey. Amen ! When it rains,

the rainbows, and or sunshine always follows !XoXoXoXo

[Faithdeb in reply to RLN-overcomer]

God bless you

[CancerkickerKathy in reply to RLN-overcomer]

Wow! That's one amazing recovery. May God smile on us all.

[CancerkickerKathy in reply to RLN-overcomer]

So did you have surgery and treatments? To be honest. If they told me those chances I would have skipped chemo.

[KCooksey1967]

God Bless You!

[RLN-overcomer]

God bless you ,heir to the throne.

[Lorrieann]

I was also diagnosed and treated for triple negative breast cancer in 2017.

[KCooksey1967 in reply to Lorrieann]

did you have surgery? chemo or radiation?

[Arumana]

Hi,

I am 42 year old triple negative and BRCA 1 positive. I was diagnosed March 2017. Stage 2 , 1 lymph node involved. I am on the process of preventive treatment.

You were stage 2 , any lymph node involved ?

[KCooksey1967 in reply to Arumana]

I was 49 last year, was stage stage 2 and BRCA negative. I believe they removed 3 lymph nodes and one was bad. where are you located?

I had lumpectomy then I did 6 rounds of chemo every 3 weeks, Docetaxel and Carboplatin, then 20 radiation treatments at Stanford.

God Bless You! Don't forget you are a survivor! You can do it, stay positive! xoxo, Krisztina( so sorry for the late reply)

[Arumana in reply to KCooksey1967]

Hi Krisztina,

Thanks for your reply. My treatment was done in singapore. I can't go back to normal life as other process going on. Hopefully end of this year I can settle in ! This genetic matter changed my treatment in different direction. It was shocking for me as I don't have any family history of BC. Anyway it is my destiny. It's been difficult for me to stay positive though I am trying hard.

Do you live in Bay Area? I used to live in Santa Clara, but I moved in this part of the world around 7 years ago. We had a plan to visit Bay Area in last summar but this disease changed everything . Anyway....

Thanks for your wish. I am also wishing you all the best. Keep in touch. Love.

[KCooksey1967 in reply to Arumana]

I have a girlfriend who is triple negative and BRCA positive. She just had her last surgery in December 2017.

So strange no family history and you are still positive.

I wish you would be closer, keep me posted. Stay strong and stay positive!

[Arumana in reply to KCooksey1967]

Thanks.

[KCooksey1967 in reply to Arumana]

keep me posted, xoxo

[Arumana in reply to KCooksey1967]

I will

[MelissaEppardCoach]

Hi, How are you doing? I also was diagnosed triple negative in May of 2014. I had stage 1, ductal invasive carcinoma, grade 3. Because of BRCA 1+ status, I had a double mastecomy and 2 years later had an oophorectomy. I finished chemo in January of 2015, and am finally feeling back to myself energy wise.

[Arumana in reply to MelissaEppardCoach]

Hi,

Good to know you are feeling energetic . I am hoping to have a normal life after finishing all treatment. May I know how old are you?

I finished chemo September 2017. I came to know about BRCA1 diagnosis in middle of chemo.Dr pushing me to do oophrectomy as soon as possible that scares me. I am going to do it next month. It's been 1 year I am on this process and it seems this year will be gone for preventive surgeries. So much going on... There is no breathing space. Sometimes I feel frustrated.

Take care. Keep in touch. Love

[MelissaEppardCoach in reply to Arumana]

Hi,

I was 36 when diagnosed, and now 40. I kept thinking... 6 months out, 1 year out, 18 months out... "Wow, this is the new normal. I'm finally feeling better." But after talking with someone who was 5 years post treatment, and hearing that she was finally feeling back to her pre-cancer energy levels, I realized that it is a slow and steady improvement. What helped me a lot was walking. Every single walk, every single step you are rebuilding muscle and stamina and getting stronger. 3 years post treatment I trained to do the Avon 39, and felt so proud when I was able to complete the walk, 39 miles in 2 days all over NYC! I was 39 years old and being in this sea of all these women, and getting what would be my last period ever... it was so powerful!

After chemopause started to fade, my period began coming back a little bit. I didn't want to have another surgery, but I certainly didn't want to go through that year of hell only to have cancer come back. My understanding is that ovarian cancer is harder to detect and usually discovered in later stages. It was a shift for sure, but here I am 17 months later and never looking back. I have a 7 year old son and need to do all I can to make sure I can be around to help raise him and watch him grow. Too much important work to do! I shared so much about my journey here on my blog if you want to check it out. Melissashealinghope.com

Best of luck to you!!

[Arumana in reply to MelissaEppardCoach]

Hi Melissa,

Do you face any problem after oophrectomy? I've read and heard about lots of side effects. I am so scared about that area.

do you maintain any diet?

thanks.

[CancerkickerKathy in reply to Arumana]

I have had the oopherectomy. My period had stopped years before, I will be 50 this year. I didn't think I would have issues but I sweat terribly. Not sure if it's due to that or because I had been pretty sedentary since surgeries started and am finally starting to move some. I guess if sweating is the worst from that surgery I shouldn't complain.

[Arumana in reply to CancerkickerKathy]

Thanks for your reply. Are you BRCA positive or you did it for other reason?

[CancerkickerKathy in reply to Arumana]

I'm brca positive. So out they came.

[KCooksey1967 in reply to MelissaEppardCoach]

I was diagnosed January 2017, Stage 2, Triple negative, grade 3, BRCA negative. You finished chemo 1/2015 and now 3 years later feeling energetic? Do you feel the same physically as before cancer? What kind of chemo did you do?

God Bless You!

[MelissaEppardCoach in reply to KCooksey1967]

Hi,

I had 4 rounds of Adriamycin and 8 rounds of Taxol. It took 5 months to complete. My energy levels are finally feeling close to how I felt pre-cancer. I can still feel some residual effects of the chemo, especially when I'm overdoing it. When I'm overtired, I notice neuropathy in my fingers and toes. My upper body strength, and what I can do/lift feels different for sure. I use to practice MMA, and tried to take a kickboxing class a few months ago. My breasts felt like they were swelling up a little bit from using my arms too much. I can finally do things like downward dog and girlie pushups without pain. Check out my response to Arumana above. I shared some ways I helped my body get stronger.

Best wishes to you! <3

[KCooksey1967 in reply to MelissaEppardCoach]

thank you, I read it what you wrote to Aruma.