Arimidex: Hi, am starting on Arimidex... - SHARE Breast Canc...

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Arimidex

DoubleCola59 profile image
10 Replies

Hi, am starting on Arimidex tomorrow. If anyone has any information to share and if you feel comfortable sharing it, it would be most appreciated.

Thanks to all my sisters and fellow Warriors out there.

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DoubleCola59 profile image
DoubleCola59
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10 Replies
BklynCatwoman profile image
BklynCatwoman

Drugs like Arimidex have side effects for some people but for the most part it's smooth sailing. I had a bit of joint pain but tried out other AI drugs until I found one that worked best for me. SHARE has an AI and Tamoxifen support group. Our next meeting is on May 18 at 6 pm at SHARE's NYC office, then we'll be meeting monthly after that. (I'm one of the facilitators.) If you're in the NY area, come in. If not, we've had people call into meetings. I'm putting the link to the meetings here.

Good luck!

DoubleCola59 profile image
DoubleCola59 in reply to BklynCatwoman

Thank you so much. Just nice to hear that you haven't had any problems

BklynCatwoman profile image
BklynCatwoman in reply to DoubleCola59

Well, I did. I said above that I had joint pain and tried other AIs until I found the one that worked for me. But everybody is different and has different experiences with drugs. I suggest you keep a journal of how you feel on arimidex, if you notice anything different, joint pain, or anything unusual.

DoubleCola59 profile image
DoubleCola59 in reply to BklynCatwoman

Thank you

missa13 profile image
missa13

Hi DoubleCola59 ! There are quite a few women on here who talked on other posts about their experiences with Arimidex and other AIs. If you type Arimidex into the top right search box, you'll find all the places it's mentioned. Good luck :)

DoubleCola59 profile image
DoubleCola59

Thanks . I am a "newbie" and did not know that. Appreciate you reaching out.

missa13 profile image
missa13 in reply to DoubleCola59

No problem!

tilerk profile image
tilerk

I just got a rx for arimidex and my main 2 concerns are the joint pain and bone density loss. I'm scheduled for a bone density scan and there is a shot they can give you to increase bone density. Have you looked into that at all? Just curious as to how others are approaching it.

I too am wondering how bad the side effects will be, have read such horrible things, but everyone has such different experiences.

Good luck to you!

I had very slight joint pain in the beginning, but nothing major. However, my sister had a lot of pain. I never had any other reactions.

I was on Arimidex since a 2006 for right b/c diagnosis. In 2015, I had b/c in left breast. So much for the Arimidex. We don't know if the Arimidex prevented recurrence in right breast, but it sure didn't do anything for the left.

That being said, he switched me to Exemestane (Aromosin), after my left breast diagnosis.

It's all a crap shoot

Oh, yes, and I do take calcium supplements & get bone scan tested. So far, nothing bad!

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