Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide information and support, raise awareness, and foster research into PMR and GCA. On this forum you can share your own experiences of dealing with these little-known and frightening conditions with others who know what you are talking about; and also gain ideas about ways to take care of yourself and help yourself on the road to recovery.
Our website is www.pmrgcauk.com. On the website you can find a range of downloadable items of information, plus our regular newsletter.... read more
Vasculitis UK is the UK's number one Vasculitis charity, run by people with Vasculitis for people with Vasculitis.
We promote a national network of support groups, have a website, social media resources and a near 24 hour helpline that all help the trust to achieve its aims; offering support to sufferers, their families and friends both at home and abroad by providing information, advice and the means to contact each other.
We work with other organisations and medical professionals to improve the recognition, diagnosis and treatment of Vasculitis.
We raise awareness of Vasculitis among medical professions and the general population.
We encourage and support the formation and development of local independant Vasculitis support groups.
We raise funds in order to support research into the causes and effects of vasculitis, into improvements in the diagnosis of vasculitis and into the treatment of people suffering from all the different types of vasculitis.... read more
The St. Thomas Lupus Trust was set up as a registered charity in 1991. Its aim was, and still is, to fund 100% of the vital lupus research at St. Thomas’ & Guys Hospital and raise awareness of lupus.
We provide lupus information through leaflets and posters and through our website, where there is a free online lupus nurse service. We also regularly send out a free online newsletter which can be received by signing up to news on our website.... read more