The PCD Family Support Group support people (patients and their families) affected by the condition in the UK.
The group is run by volunteers so any advice given is from a personal perspective. For medical advice please consult your clinicians.... read more
I have Cerebral Palsy. I have had it since birth. I'm adult now.
What I have found is that there is a lot of information out there for parents who have children with Cerebral Palsy.
However, there is not a lot of support and information for adults with the condition. This is bad because Cerebral Palsy is treated like a childhood condition. This is surprising as it is not a progressive condition. People with Cerebral Palsy do not fall off the face of the earth when they hit eighteen years old. 1 in every 400 children are affected by cerebral palsy. These children will have this chronic condition for life. So if you want to share your experiences of Cerebral Palsy in adulthood. This is the place to do it.
Connect with others who understand your situation!... read more