The PCD Family Support Group support people (patients and their families) affected by the condition in the UK.
The group is run by volunteers so any advice given is from a personal perspective. For medical advice please consult your clinicians.... read more
I have Cerebral Palsy. I have had it since birth. I'm adult now.
What I have found is that there is a lot of information out there for parents who have children with Cerebral Palsy.
However, there is not a lot of support and information for adults with the condition. This is bad because Cerebral Palsy is treated like a childhood condition. This is surprising as it is not a progressive condition. People with Cerebral Palsy do not fall off the face of the earth when they hit eighteen years old. 1 in every 400 children are affected by cerebral palsy. These children will have this chronic condition for life. So if you want to share your experiences of Cerebral Palsy in adulthood. This is the place to do it.
Connect with others who understand your situation!... read more
Pain Concern works to improve the lives of people living with pain. Pain Concern
runs a helpline and publishes information leaflets and a magazine Pain Matters,
aimed at informing ordinary people about pain. The charity campaigns for better
pain services and a better understanding of the needs of people living with
Pain Concern is partnering with Able Radio to broadcast Airing Pain: the radio
show for people in pain. It will look at a wide range of topics with the aim of
easing every aspect of life for people in pain. Once a fortnight, Airing Pain
will bring patients and healthcare consultants together to talk about the
resources that can help.... read more