Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide information and support, raise awareness, and foster research into PMR and GCA. On this forum you can share your own experiences of dealing with these little-known and frightening conditions with others who know what you are talking about; and also gain ideas about ways to take care of yourself and help yourself on the road to recovery. Do discuss ideas you find on the forum with your doctor.
Our website is www.pmrgcauk.com. On the website you can find a range of downloadable items of information, plus our regular newsletter.... read more
We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous malformations or cavernous angioma.
What is a cavernoma?
A cavernoma looks like a raspberry and are also known as cavernous angioma, cavernous haemangioma or cerebral cavernous malformation (CCM). A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord. Cavernomas can measure from a few millimetres to several centimetres. A cavernoma can get bigger, but this growth is not cancerous, and it does not spread to other parts of the body.
1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
... read more
Up to 2.7 million people in the UK live with Fibromyalgia (Fibro) &amp; the awareness of this condition remains very low. Fibromyalgia Action UK (FMAUK) is a registered charity raising awareness &amp; making evidence-based information about Fibromyalgia easily accessible. Fibromyalgia Action UK uses HealthUnlocked to provide those living with Fibromyalgia a way to communicate with others &amp; share their experiences. We have community volunteers who also live with Fibro that work hard at maintaining a supportive &amp; friendly community atmosphere. Many members post about diagnosis, research findings, treatments &amp; all things Fibro plus we have regular polls, which starts interesting discussion within the community.
... read more