The St. Thomas Lupus Trust was set up as a registered charity in 1991. Its aim was, and still is, to fund 100% of the vital lupus research at St. Thomas’ & Guys Hospital and raise awareness of lupus.
We provide lupus information through leaflets and posters and through our website, where there is a free online lupus nurse service. We also regularly send out a free online newsletter which can be received by signing up to news on our website.... read more
This HealthUnlocked Community is run by LUPUS UK - The national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis.
This community is available for anybody affected by lupus to get information, support and advice from other people who are similarly affected.
The community discusses a wide range of topics including; diagnosis, symptoms, medical appointments, medications and support available.... read more
Lupus Patients Understanding & Support (LUPUS) is a non-profit organisation for patients-affected-by-systemic lupus erythematosus, lupus variant conditions and the antiphospholipid antibody (Hughes) Syndrome. Our organisation was founded in 2000 with the intention of providing free information and free online psychological support. Our organisation is unique in that it has its own inhouse counsellor and psychotherapist.
Lupus Patients Understanding & Support (LUPUS) has two further websites. Our information website can be seen here: http://www.lupus-support.org.uk while our online psychological support at the Lupus Message Board is here: http://www.lupus-support.org/LuPUSMB and registration is free. Come and Join Us https://www.facebook.com/SUPPORT4LUPUS... read more
my body aches with pain so much and my hands swell up and my fingers get very sore.. i have cyst on my kidneys, hiatus hernia, ceelica disease, cronic fatuge,fibro,M.E and now the doctor think i might have lupus as got this red rash on my nose continue reading →
if I have scalp condition (follicular something?),butterfly rash on face,rash on hands and legs and nasal sores-would not link them all to lupus?my dr said today they could be a number of things -so why not refer me to a dermatologist and let themcontinue reading →
gp says i dont have lupus as have been tested fro it btu no one has ever told me so -and he has treated me individually for lupus symptoms-scalp condition nasal sores facial rash - .definitely not the rheumatologist -he never did any bloods and ascontinue reading →
Hello, I am new to this blog and have recently discovered I have Lupus. I have been looking at natural ways of supporting this and hopefully curing myself completely. I recently came to the realisation that I have had Lupus for some time .. I've See post →
I was recently diagnosis with lupus about three years ago, in which I am now in remission. I attended lot of meetings for info regarding this autoimmune illness. Received training from the organization, has books, knowledgeable of nightshade continue reading →
evening all am new to this site and wanted to say hello to all iv had a really bad flare and am hopefully over the worse but having a difficult time coping with the pain in my joints tomorrow another daycontinue reading →
I had my appointment with rheumy consultant last week....have lots of ongoing blood tests done for further investigations for other health problems...waiting to see a neurologist? But he just happened to mention the rash on my face which he continue reading →
Still nothing conclusive. Asking for opinions. I had another ANA test and it again came back positive. The ANA Pattern IFA is still pending. DNA-ds Ab is 6. The range says 5-9 is indeterminate? Sed Rate (ESR) is 10. C-Reactive Protein (CRP) continue reading →
My 19 year old daughter was diagnosed with having Lupus in April this year. She has had a rough time with ad she has had 2 lots of siezures dangerously high blood pressure anemia and kidney failure. So as a family we have been to hell and back continue reading →
my mum has lupus, every morning she wakes up with thick hard phlegm in her throat, any one knows why this is the case, and she has a post nasal drip . nothing can be done about that, she has had procedures done to help with it but it keeps coming continue reading →