Sticky-Blood – Hughes Syndrome Support along with the registered charity GHIC (1172388) is a Forum that helps support people with Hughes/Antiphospholipid Syndrome and Sero-negative Hughes/APS (SN-APS) from the UK and globally. We also enhance education, awareness and research into Hughes Syndrome. Please share your experiences, gather useful information, learn from others and don’t be afraid to ask for help if you need it, but above all please enjoy this site!
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Lupus Patients Understanding &amp; Support (LUPUS) is a non-profit organisation for patients-affected-by-systemic lupus erythematosus, lupus variant conditions and the antiphospholipid antibody (Hughes) Syndrome. Our organisation was founded in 2000 with the intention of providing free information and free online psychological support. Our organisation is unique in that it has its own inhouse counsellor and psychotherapist.
Lupus Patients Understanding &amp; Support (LUPUS) has two further websites. Our information website can be seen here: http://www.lupus-support.org.uk while our online psychological support at the Lupus Message Board is here: http://www.lupus-support.org/LuPUSMB and registration is free. Come and Join Us https://www.facebook.com/SUPPORT4LUPUS... read more
The Australian Sjogren's Syndrome Association Inc. was incorporated in Parramatta in 2001, although due to illness of the founder, the association did not commence trading until June 2004 in Mullumbimby, Northern NSW. The name of the founder and president is Ms Beverly Norton.
The Association was started by Beverly Norton who, in May 2000, was diagnosed with Sjogren's, a disease that Australian doctors knew very little about. Sjogren's (pronounced show-grins) syndrome is a chronic, autoimmune disorder in which the body's immune system mistakenly attacks its own moisture producing glands. The specific causes of Sjogren's syndrome are not known, but multiple factors are probably involved. These include genetics, viruses, hormones or a combination of all of these. It is critical that it is identified quickly and treated otherwise it can be fatal.... read more