The PSP Association is a national charity offering information, practical and emotional support to people affected by PSP and CBD today, while supporting research into treatments for the future.
Our aim is that people affected by PSP and CBD do not feel they have to face the future alone. We offer support through our helpline and information service via telephone or email, our network of Local Groups and our Specialist Care Advisers, who work to ensure that people affected by PSP and CBD have access to good local support. We also offer a wide range of resources and publications.
If you require information or support contact our confidential helpline and email service Monday to Friday 9am to 5pm and 7pm - 9pm.
Tele: 0300 0110 122
Email: email@example.com ... read more
The Multiple System Atrophy Trust is the only charity in the UK and Ireland that provides information and support to people affected by Multiple System Atrophy (MSA). We do this through a number of ways including our three MSA Nurse Specialists, a network of Support Groups, information resources and our MSA News magazine. We also provide funding towards research projects and small grants to our members. We are entirely funded by voluntary donations.
Share your stories, ask questions and support one another!... read more
The Australian Sjogren's Syndrome Association Inc. was incorporated in Parramatta in 2001, although due to illness of the founder, the association did not commence trading until June 2004 in Mullumbimby, Northern NSW. The name of the founder and president is Ms Beverly Norton.
The Association was started by Beverly Norton who, in May 2000, was diagnosed with Sjogren's, a disease that Australian doctors knew very little about. Sjogren's (pronounced show-grins) syndrome is a chronic, autoimmune disorder in which the body's immune system mistakenly attacks its own moisture producing glands. The specific causes of Sjogren's syndrome are not known, but multiple factors are probably involved. These include genetics, viruses, hormones or a combination of all of these. It is critical that it is identified quickly and treated otherwise it can be fatal.... read more