The PBC Foundation is the only UK organisation that specifically deals with Primary Biliary Cholangitis (PBC) - which is an autoimmune condition that affects the liver. We have registered service users in over 71 countries around the world. We at the Foundation provide support and accurate information to those diagnosed with PBC, their families and loved ones. If you wish to become a registered service user with the PBC Foundation, please visit our website www.pbcfoundation.org.uk/existing-members/join-us
and follow the registration process or alternatively please call our office +44 131 556 6811 and we can send out our registration pack.
Please note that joining HealthUnlocked is not the same as joining the Foundation. Whilst both services are free, to use both you must register for both.
HealthUnlocked is about peer-to-peer patient support. The Foundation is about much more.... read more
Alopecia UK is a charity dedicated to supporting those affected by all types of hair loss. We are predominantly contacted by people with alopecia areata, an autoimmune condition causing sudden hair loss. It affects both genders equally and can strike at any age.
The charity was founded in 2004 and registered with the charity commission in September 2005.
Our Vision is to improve the lives of those affected by alopecia.
The charity has aims centred around support, awareness, research and fundraising.
We have lots of details on our website including details of support groups and ways to get involved with Alopecia UK.
... read more
The Australian Sjogren's Syndrome Association Inc. was incorporated in Parramatta in 2001, although due to illness of the founder, the association did not commence trading until June 2004 in Mullumbimby, Northern NSW. The name of the founder and president is Ms Beverly Norton.
The Association was started by Beverly Norton who, in May 2000, was diagnosed with Sjogren's, a disease that Australian doctors knew very little about. Sjogren's (pronounced show-grins) syndrome is a chronic, autoimmune disorder in which the body's immune system mistakenly attacks its own moisture producing glands. The specific causes of Sjogren's syndrome are not known, but multiple factors are probably involved. These include genetics, viruses, hormones or a combination of all of these. It is critical that it is identified quickly and treated otherwise it can be fatal.... read more