Sticky-Blood – Hughes Syndrome Support along with the registered charity GHIC (1172388) is a Forum that helps support people with Hughes/Antiphospholipid Syndrome and Sero-negative Hughes/APS (SN-APS) from the UK and globally. We also enhance education, awareness and research into Hughes Syndrome. Please share your experiences, gather useful information, learn from others and don’t be afraid to ask for help if you need it, but above all please enjoy this site!
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The St. Thomas Lupus Trust was set up as a registered charity in 1991. Its aim was, and still is, to fund 100% of the vital lupus research at St. Thomas’ & Guys Hospital and raise awareness of lupus.
We provide lupus information through leaflets and posters and through our website, where there is a free online lupus nurse service. We also regularly send out a free online newsletter which can be received by signing up to news on our website.... read more
The Australian Sjogren's Syndrome Association Inc. was incorporated in Parramatta in 2001, although due to illness of the founder, the association did not commence trading until June 2004 in Mullumbimby, Northern NSW. The name of the founder and president is Ms Beverly Norton.
The Association was started by Beverly Norton who, in May 2000, was diagnosed with Sjogren's, a disease that Australian doctors knew very little about. Sjogren's (pronounced show-grins) syndrome is a chronic, autoimmune disorder in which the body's immune system mistakenly attacks its own moisture producing glands. The specific causes of Sjogren's syndrome are not known, but multiple factors are probably involved. These include genetics, viruses, hormones or a combination of all of these. It is critical that it is identified quickly and treated otherwise it can be fatal.... read more