The Australian Sjogren's Syndrome Association Inc. was incorporated in Parramatta in 2001, although due to illness of the founder, the association did not commence trading until June 2004 in Mullumbimby, Northern NSW. The name of the founder and president is Ms Beverly Norton.
The Association was started by Beverly Norton who, in May 2000, was diagnosed with Sjogren's, a disease that Australian doctors knew very little about. Sjogren's (pronounced show-grins) syndrome is a chronic, autoimmune disorder in which the body's immune system mistakenly attacks its own moisture producing glands. The specific causes of Sjogren's syndrome are not known, but multiple factors are probably involved. These include genetics, viruses, hormones or a combination of all of these. It is critical that it is identified quickly and treated otherwise it can be fatal.... read more
MPN Voice (formerly MPD Voice) is a UK based registered charity whose mission is to offer information and emotional support to patients with MPNs and their families. Myeloproliferative neoplasms (also known as disorders) are chronic diseases affecting the levels of blood cells in the body, the three main types are Essential Thrombocythaemia (ET), Polycythaemia Vera (PV) and Myelofibrosis (MF). People affected by MPNs often feel isolated and need support and accurate information about their MPN, MPN Voice provides this support and information via the website, patient forums and this online forum at HealthUnlocked which gives people with a MPN a place to ask questions and discuss their condition, symptoms, medication and other related concerns with fellow patients. The community is run by Maz who is also the administrator for MPN Voice, and Louise who is a volunteer.... read more
We are a charity primarily focused on helping patients and their families with ME (Myalgic Encephalomyelitis) and CFS (Chronic Fatigue Syndrome) living in Edinburgh, Scotland. We welcome members from around the UK and the world with an interest in ME and CFS friends – indeed, anyone with an interest in M.E. or CFS.... read more