i saw a scleroderma specialist yesterday, thought i was going for the nail foil capilliary test but there was a mix up. He told me i have the severe form of scleroderma and wants me to start on methotrexate says it will help my skin. i was upset to hear the news as i thought until that point i had the limited form (aka crest) . There are lots of questions re prognosis life expectancy etc going round in my head right now. my arms legs mouth are affected currently and my upper chest is just beginning to feel taut (3 days now) i have some acid reflux but that is it . would like to hear how other people have got on since diagnosis
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