My daughter has scleroderma she is on hydrochloacholrine after taking methertrexate I just wish this thing would go away she is angry about it she has fydromyalgia aswell I'm angry as where it as cum from I fell that she doesn't always get good treatment as blood tests are limited and has had hospital appointments cancelled and rebooked for this time next year it has affected her lungs and affects her talking if she talks to much with her job I have emailed the Royal free hospital and Royal bath for help as they are both good for her conditions any help advise please

2 Replies

  • Well where does it come from your genes you have a one in 5 chance . It's no good of being angry . That won't cure anything just make it worse . if you have one auto iummue thing sometimes you have more . cos iummue system is up creek . I wonder if you should start with GP to refure you ? . Have you asked a Rhumeatiod OT to look at you . Pain wise it's very good . To teach you how to manage with rest . Making life better .Ask to see Rhumeatolist as well

  • It might be worth looking to go to other hospital as if you live in Wales for insence they get less funding .

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