My consultant discharged me from his care 18 months ago, after 6 years of seeing him, as my scleroderma had stopped progressing. However, 18 months later, I'm struggling with walking too far, bending my knees, doing anything even slightly physical. I still have fatigue, but normally with 9/10 hours sleep at night, I can still work full time. I'm a hairdresser so I have to stand all day, use my arms (which are really painful), hands etc.. I have no skin involvement. I was wondering if these are more symptoms of my scleroderma and I should contact my old consultant? Or wether im just being a lightweight? Im only 43, but I feel 80! Xx
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