My husband has been confined to bed for the last 8 months. He suffers with exhaustion, fatigue, oedema and breathlessness. He has intermittent episodes of sharp, fluttering sensations under left rib cage. His skin is a very strange grey colour, his hands and feet are puffy and fingers are changing shape. He has cold extremities and a permanent cold sweat on his brow. He suffers with dizziness when rising or bending down and has blacked out on occasions. Sometimes he gets a bout of breathlessness just sitting on a chair or when under no physical strain at all, his heart pounds and he get breathless for a few seconds before it eases. He has often a dry mouth and had occasionally trouble swallowing, muscle pain especially in lower legs and limbs feel heavy. GP did blood tests ,echo-cardiogram, chest X-Ray and ECG. They all came back as satisfactory. GP discharged him and told him to change diet in late June. We made numerous trips to surgery and suggested auto immune diseases as he has obvious Raynaud's and my husband was told that it was anxiety and depression. He has had Spirometry tests which show his lung capacity to be down by 25% and despite the nurse that took the test sending an alert to the GP it was ignored. Since then, he is no better but we have been left high and dry. The GPs make some feeble excuse or another each time we arrange an appointment, even the Cardiologist at the Hospital cancelled his appointment without even checking him over, despite purple lips, fingers and feet, oedema which diuretics do not completely clear from lungs and pains in abdomen.
We are desperate for a diagnosis but we are either ignored and passed from one person to the next, none of whom appear to be interested or have any understanding of the problem and or how to pursue it.
Can anybody associate with these symptoms and offer any advice on where to go or what to do next please? We are at our wit's end.