Curious if any with internal organ involvement are in remission from Scleroderma? if so, please tell me how old you were when you were diagnosed? how did you get diagnosed? what treatments were you on? how did you feel on these treatments? and how are you doing today?
I am in the process of being diagnosed. Have heart problems, a little raynauds, positive ANA nucleolar pattern, some digestive troubles. Digestive problems are non existent, raynauds not bad, two years ago suffered from arrhythmia of which I was implanted with an ICD and placed on Sotalol. Undiagnosed until now. Been running a lot so docs do not believe it has entered my lungs. Docs are considering Cellcept or Methotrexate (sp?). Would love some positive stories! I am 40 and being blindsided by all these health issues. Crazy!