I have been diagnosed with fibromyalgia in 2004 and about a year ago I started to develop other symptoms that are far more intense than the symptoms associated with fibromyalgia. It includes pain in the whole body , sharp burning pain tha can effect either side of my body and sometimes the whole body from the top of my head all the way to my feet and other times it can effect just quadrants and halved. It tends to be located in a specific part of my body for a few days before it switches to other places. I also feel tightness in my joints that feels like my skin is rigid and it is painful to make movements like closing my hands and sometimes from the middle of my feet to my toes gets yellowish, cold and I lose all the sensation on them. I has worsened in the last 6 months and now I can only get out from bed with ibuprofen and paracetamol which I have been continues taking for the last 6 months. When Work out more than I 'should ' like going to the supermarket and cleaning my house on the same day the burning sensation gets more intense and it least longer to disappear. The only thing that helps is if I lye dawn. I also have some kind of vibration sensation that goes from my back down to my feet especially when I am lying down and it intensifies when I move around more.i have also problems in my kidney where I have done some x-Ray and my right kidney is smaller than the left side.
I have I long history of migraine and headache that have worsened in the last year. Nowadays my migraine tend to start when a walk for less than 10 minutes and it usually is associated with pain that radiates upon from my neck over the top of my head to one side or another. I also have been diagnosed with /Raynaud'sphenomenon. During my neurological examination the doctor found I have 4/5 weakness of shoulder abduction bilaterally. Reflexes were briskish but not pathological and sensation was objective normal but subjective reduced in the right hand with sparing of the median aspects of the hand (not sure what that means). The reflexes were very brisk at the knees and at the ankles and the plantars were both mute. I have done EMG, IMR exams last week. And I did a lot of blood test including all tests related to autoimmune diseases least month but I don't know the results. What got my attention is that I received a latter saying I have been referred by my actual neurologist to go to a genetic clinic and I am not sure why.
I am wandering if anyone has any idea of what to make of my symptoms and if it might be related to scleroderma and if so what is the connection with me been referred to a genetic clinic. I appreciate all the information you can give me because my neurologist will only enter in contact with me when he gets all exams results and if he will be waiting to have some feedback from the genetic clinic it will take forever. Thank you.