Hi all . I have been on a clinical trial injecting tocilizumab once a week , the trial is for two years and for me it's coming to an end around Christmas time. This drug has done me so much good and I am scared to stop taking it as it has improved my mobility so much that I can at times get about without a stick. Before taking it I had to use a mobility scooter,wheelchair,bath lift and my husband had to help me dress,cook and do the housework. And my condition was getting worse daily. This makes me very scared , i dont want to go back to how it was. So scared of going backwards.