Hi there. Im 37 and new to all this. I have hashimotos thyroiditis (diagnosed last September) and now I also have some mitochondrial antibodies showing up for something else in my latest bloods - 1:80 titre - found in things like PBC, SLE or systemic scleroderma.
I have recently been having trouble with my throat - feels plegmy but nothing really there and also Im constantly wanting to clear my throat and I am just aware that theres an odd unconfortable feeling there. I initially put this down to my hashis and it possibly being enlarged (all good on scan - no nodules or enlargement showing) but now with these new blood results Im wondering if its something else related to one of these other diseases? I see that scleroderma has swallowing difficulties and am now really worried I have that.
I saw a gastro specialist yesterday and he has started me on reflux pills (never had reflux in my life). I doubt very very much this is the issue. Im scared witless its one of these other diseases. Im in New Zealand and I really dont have a lot of faith in our doctors with regard to these less known ailments.
Did any of you have trouble with your swallowing or throats first? How long is it before other symptoms start joining the party as well. What do they give you for swallowing issues?? I cant imagine not being able to swallow naturally. The more I worry about it the worse my throat seems to feel as well!
The specialist said there arent really any blood tests for scleroderma and that we would just have to wait and see what ends up rearing its ugly head. He said sometimes people have these things in their bloods but nothing symptom wise eventuates?? Is this true? Do "normal" people wandering around have these antibodies anyway? Im picking that as I already have one auto immune that its safe to assume theres another one brewing. Hes not going to do any follow up bloods for the AMAs as he said theres no point in tracking them as theres little that can be done anyway! He did say scleroderma is an awful disease to manage and that he had his fingers crossed it wasnt that
Feeling very worried and depressed about all this. I have three beautiful little kiddies and Ive always been so busy, independent and on the go. I cant imagine suddenly having something that stops me from being me and not being able to lead a happy normal life with my family.
Sorry, long post. Hopefully someone can be bothered reading it! Any advice would be much appreciated. Feeling very isolated and alone over here in NZ!