Hi fellow forum members,a few of you will recognise me, I have been offline for a few weeks. Mum is desperately poorly now, she was admitted to hospital a month ago with breathing problems and excessive fluid build up, let alone her whole body now being covered in hard skin, mums kidneys are not happy at all and my brother and I had to do a bit of kicking and screaming to get mum better treatment, seeing her rocking back and forth and crying her eyes out was the last straw, boy did we have to shout loudly! Mum is now in the royal free hospital in London, she was taken by ambulance last Thursday, I believe rheumatology are aware of her being there but she is in the acute kidney unit for now, they want to get her kidneys feeling better before the scleroderma can be tackled, I just don't know how mum can come back from this but I do believe that the royal free is one of the best. It is a logistical nightmare and with a 74 year old dad on his own here in Bournemouth, Dorset it is a real heart wrench. Bournemouth hospital admitted they didn't know what to try and treat next so for me the only choice was to get mum out of there. I think mum is due to have a kidney biopsy to determine the proper cause of her poorly kidneys. We are visiting once a week with dad and trying to get other members of the family to visit and keep her spirits up whenever we can. I do hope mum can be given a reasonable quality of life, I guess if anyone can then london can! We only ask for a reasonably pain free life and for mum to smile again, she doesn't need to do the waltz or samba anymore, just a smile and a warm comfy feeling at home. Thank you so much for reading. X
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