Of course having normal LFT s doesn’t mean that you won’t progress but it’s supposed to mean you have better chance of not progressing....
How do you keep busy mentally, physically, socially etc... to help manage loneliness, self-worth?
This has been a big test of of character I’m sure for all of us. I’ve tried to find ways to stay active mentally and all other ways to beat d...
Has anyone stopped taking Ursodiol for a short time?
Has anyone stop taking your Urisidol for two weeks if so what happened or what was the longest you were not able to take your - Ursodeoxychol...
Peri-Menopause and Menorrhagia
Ok I'm at my wits end after six years of flooding through tampons in three minutes or no longer able to hold them in. I have moved on from ni...
Has anyone ever had a repeat fibroscan ?
I got diagnosed in May with PBC due to elevated ALP(991 ) now 336 after 5 weeks on Urso....
Diagnosed with Scleroderma but am having really bad muscle pains to the point where I’m in bed 4days!!! Hopefully u can relate?
I was diagnosed with scleroderma about year n a half now.... I’m on cellcept 500 4 times a day!!!...
So, any ideas about this quite strict diet?
I have candida in my osepheagus, showed up on my endoscopy last week. I had lots of abs end of last year, 6 weeks in total which i am sure is...
Pain, melatonin, and Raynaud's
My husband and I took a low dose melatonin last night, 3 mgs. It helped me sleep and stay pain free all day long....
Wow it's getting ugly
Went to beach yesterday last night sitting on pier relaxing looking out at ocean get a text my sisters husband my brother in law physically t...
Hi does anyone have problems with tummy cramps and coffee had chronic diarrhoea on sat morning cold sweats then went away till monday afterno...
I have had this diagnosed with this distressing disease in Feb ' 19 and started on Dermovate from my GP then had a referral to a dermatologis...
From what I’ve read, with PBC ALP seems to continue to elevate vs decrease this substantially....
Some down to earth advice needed please!
I'm just wondering if anyone can advise me whether any of the supplements I'm taking could interfere with the MXT doing its job. I've honestl...
Good news! LFT
I had my lung function test yesterday. No significant change My condition has not got any worse....
Ma vie est un enfer
Bonjour, je suis nouveau ici et j'essaie de chercher le plus de renseignements possible et surtout s'il y aurait un autre traitement sur les ...
My daughter Lauren
First time poster, I am going to support as much as I can going forward not for me as I don't have the condition but for my daughter Lauren w...
steroids meds and hair, but mainly about hair loss
I know I keep banging on about hair, and sorry about that but its important to me I was worried about meds and losing hair, then I read stero...
Hi there, I haven't yet been diagnosed with scleroderma, but at this point with the symptoms I'm fairly confident that it's going to be. I ca...
Dry skin and systemic sclerosis
I have systemic sclerosis and secondary raynauds and saw my rheumatologist yesterday ( 2nd appt ) we talked about things that are different i...
Good afternoon, First time on this site and am asking a question on behalf of my husband if it is alright with all. He has Raynaulds together...
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