Of course having normal LFT s doesn’t mean that you won’t progress but it’s supposed to mean you have better chance of not progressing....
How do you keep busy mentally, physically, socially etc... to help manage loneliness, self-worth?
This has been a big test of of character I’m sure for all of us. I’ve tried to find ways to stay active mentally and all other ways to beat d...
Peri-Menopause and Menorrhagia
Ok I'm at my wits end after six years of flooding through tampons in three minutes or no longer able to hold them in. I have moved on from ni...
So, any ideas about this quite strict diet?
I have candida in my osepheagus, showed up on my endoscopy last week. I had lots of abs end of last year, 6 weeks in total which i am sure is...
My daughter Lauren
First time poster, I am going to support as much as I can going forward not for me as I don't have the condition but for my daughter Lauren w...
Ma vie est un enfer
Bonjour, je suis nouveau ici et j'essaie de chercher le plus de renseignements possible et surtout s'il y aurait un autre traitement sur les ...
Good news! LFT
I had my lung function test yesterday. No significant change My condition has not got any worse....
From what I’ve read, with PBC ALP seems to continue to elevate vs decrease this substantially....
Charity systemic sclerosis
As some of you know I ran London marathon 5 weeks ago after being diagnosed with systemic sclerosis and secondary raynauds in December. I wan...
Dry skin and systemic sclerosis
I have systemic sclerosis and secondary raynauds and saw my rheumatologist yesterday ( 2nd appt ) we talked about things that are different i...
Good afternoon, First time on this site and am asking a question on behalf of my husband if it is alright with all. He has Raynaulds together...
steroids meds and hair, but mainly about hair loss
I know I keep banging on about hair, and sorry about that but its important to me I was worried about meds and losing hair, then I read stero...
Some down to earth advice needed please!
I'm just wondering if anyone can advise me whether any of the supplements I'm taking could interfere with the MXT doing its job. I've honestl...
I researched Journal of Lipid Research & looked into their clinical trials with the use of statins & PBC....
Looking for information and support system
I got diagnosed with diffuse cutaneous scleroderma in October 2017, I'm currently on cyclophosphamide and just finished a course of iloprost....
I’ve been told the disease is progressing fast and will need transplant 3-5 years I’m a non responder to Urso etc....
scared and lonely
I was diagnosed with limited systemic scleroderma 2 weeks ago ( I'm 72 ) – my only symptom is Raynauds and also a complete change in bowel ha...
Hi there, I haven't yet been diagnosed with scleroderma, but at this point with the symptoms I'm fairly confident that it's going to be. I ca...
Never felt like this before
WTF is going on with me nightmares have started again ,exactly the same as before 😢 wat if i would have just ran away n left them both behin...
Hi there, I’ve recently been prescribed Glyceryl Trinitrate ( Deponit ) patches & Hydroxychloroquine ( tablets ) for my limited cutaneous sys...
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