We went to cardiologist yesterday. An he said all tests seem ok, but not sure why terry is still so tired an irritable, He said there maybe a neurological problem an are now making mri appointment. I have been saying for ages that things weren’t right. The cardiologist said it’s probably because the lack of oxygen at the time of sca in march. Has anyone else. Experienced this.
Thank you
We have yet to see a cardiologist following cardiac arrest in July but we have seen a neurologist and had an MRI, still waiting for the results tho. Ds symptoms are tiredness (which is normal and a side effect of statins and not sleeping welll) along with limb shakiness which causes falls and inability to walk down the stairs. He can get snappy quickly as well. So apart from the limbs sounds like yours is doing the same as mine!
Yes I think it is love, it’s hard to cope sometimes isn’t it, I have taken your advise an had time on my own recently and it felt good. I wish we went out together though. He says we can’t afford it as we on benefits at the mo, I had to give my job up while he was on hospital as I couldn’t be in both places an the doctors at one point gave him 3-5 days to live. I believe though he is going done hill he doesn’t really get out of bed an if he does then he sleeps on sofa. So I have to sit in silence then.
Sending my love to you
KARON
Hang in there, try and get him out even for a walk round the block. Is he doing the cardio rehab classes? He should have been offered these. You could then use the time to go for a coffee.
Thank you, an yes he did love going to rehab we didn’t start til 6weeks ago as he has not been well enough. I do take the time to have a walk or a cuppa. But alas I can’t even get him to meetings anymore. As we speak he is in bed an has told me he is having a rest day but every day is the same
Oh yeah. As you posted "because the lack of oxygen at the time of sca" is most likely the reason. Has anyone ever talked with you about him sustaining a brain injury as a result and all the related symptoms and treatments for that. Being tired and irritable all the time are also symptoms one would experience as a result of sustaining a brain injury. I sustained an anoxic brain injury as a result of lack of oxygen with surviving cardiac arrest. You may want to check this out : headway.org.uk/search/?Sear...
Maybe the tiredness is causing the problem possibly Microvascular so not showing up on tests .Doctors are taught to ignore symptoms but as diagnosis relies on clusters & current & historical testing as conditions change along with NHS for better or worse.Are they deliberately delaying doing this having not taken Hippocratic oaths ? So diagnosis delayed as is assessment causing personal injury that the directed to Complaints system & call centres[ lawyers? ] refuse to address because have no qualification, ethics or discretion.
Could it be because of Continuing Care Funding with social service negligence re: potential Multi infant dementia connections as in my case , as we are being ripped off by deliberately faked assessment by the unqualified i.e.: not GMC registered. A nurse on a remit ignoring history & disability & complexities is not it.Then ganging up online behind my back .I thought there was trust & confidentiality .Is this it? I watched this happen tragically to both Late parents under the nose of the most notable MPs allowing PAs on remits to administer Strict Protocol into nowhere.
It is only when chronic has become acute you see the truth staring you in the face otherwise why was I revived with an angioplasty at MI then left to fester thereafter with PAH ignored only showing as Reveal device inserted? ?! 12 years later?Even the heart failure symptons caused by withholding antibiotics for disability spina bifida [ abnormal EEG withheld .And Doctors in 1980s said not taught about disability so sent to hospitals for patient orientated research which was then Cut over and over again blaming till MI 12 years later.
Still to this day I am not accessing the Urgent even though neurogenic bladder & never been able to catheterise re cellulitis lipo-lymphoedema stage 2 only just diagnosed no treatment except sedation delaying everything that needs Fast tracking re PAH & dyspnoea[ Brompton] But Gpis trying because standing up to be counted trying to make mental issues that could effect access as saying costing too much money .Well I am not in control or collaborating fairly when admin does not inform correctly to upset ?
Check out MS Therapy Centres for some therapies such as oxygen you have to self fund others ones you're not allowed as / not their area .Check out BRaMS [ at North Bristol Hospital] As suspect you can access the therapy but not the Dr outrageous .I am sure it is there or nearby saw depression etc as symptoms for which assist.If you have multi conditions & disabilities they will maladministrate so you get no assistance which is surely not legal?
