Newly diagnosed: Hi I have recently been... - SarcoidosisUK

SarcoidosisUK

428 members62 posts

Newly diagnosed

Janehbarnes profile image
0 Replies

Hi

I have recently been diagnosed with Sarcoidosis although I believe it started 4 years ago and was treated mistakenly for adult onset Asthma. I have recently undergone a lung biopsy and VATS Procedure to rule out any carcinoma of the lung as my lungs have widespread nodularity. They have now confirmed it is sarcoid and not cancer so hugely relieved at this. It has been a long 6 months to get a diagnosis with many scans and procedures. I have started high dose steroids which are giving me terrible insomnia but I noticed one lady on here switched to taking them in the evening rather than the morning in order to help with the insomnia so i am going to try this.

Written by
Janehbarnes profile image
Janehbarnes
To view profiles and participate in discussions please or .
Read more about...

You may also like...

Living with sarcoidosis

Thankyou to all of you tht have read my story all the way through as a sarcoidosis sufferer you...

Confirmation of Sarcoidosis

signs of Sarcoidosis but I was too old. I am 79. I have read the literature about Sarcoidosis and I...

Neurosarcoidosis, does anyone have any experience of this frustrating condition?