Starting Salsalate for PSP
loustalet in PSP Association3 years ago
My wife has been suffering from PSP for several years with the first symptoms appearing in 2006!
Apparently it is a slow evolving form of PSP...
Taking Levothyroxine and Aspirin or Salsalate or Meclofenamate
Nathalina in Thyroid UK5 years ago
Just throwing this out there in case anyone is looking for a link between Aspirin and Thyroxine
They concluded that, “These data confirm that...
Starting Nilotinib for PSP
kj555 in PSP Association3 years ago
Has anyone started Nilotinib for PSP.We have started it off label.
Is ibuprofen OK for Hashimoto sufferers?
Adam10 in Thyroid UKa year ago
I suffer from Hashimotos and hypothyroidism and am down with the flu. My endocrinologist has prescribed Advil Cold & Sinus (1-2 caplets 3 ti...
new here and have questions hope you guys can help
donam in LUpus Patients Understanding and Support6 years ago
I have been taking methotrexate for 2 months now so i know i am new to this. But it seems that i feel ok with the meth but when i take the f...
Can other meds affect Levo?
teyris in Thyroid UK5 years ago
I am taking Aspirin, Lisprinol and Bisoprol as well as Levothyroxine. Can they affect the absorption of the Levo as I take them at the same...
Current Clinical Trials for PSP, MSA, CBD
Christine47 in PSP Association2 years ago
From a CurePSP post from Janet Edmunson, so you wont have to wade through a list
what can i do for my mom?
namssang in PSP Association2 years ago
hi, at first, i do not speak english as my native language. i live in south korea. so, i'm hopeful for your understanding.
my mom is suffere...
University of Miami Study with Mannose
msmock in PSP Association3 years ago
Hi. My sister was diagnosed with PSP 2 years ago. Like many of you, I have spent time searching the web for any possible thing that may he...
Clinical trials for PSP
MaggieBoutros in PSP Association3 years ago
Hello everyone, my mom was diagnosed with Psp in 2014 and we are deperatley trying to get her to participate in a clinical trual. There is a...
mattgo in PSP Association3 years ago
I have been reading as much information as I can find. I found this information regarding a billionaire from Texas who is piling a TON of mo...
allany in PSP Association4 years ago
As well as double vision I now find it almost impossible to open my left eye independently of the right. I can open them both together but f...
AliciaB in PSP Associationa year ago
I stopped looking for CBD changes; I do try to take note of things that come up. I keep notes, not a journal. I print them and give them to ...
MS like symptoms
pumpkincake in Sticky Blood-Hughes Syndrome Support7 years agoPOPULAR
Has or does anyone have MS type symptoms with APS/Hughes????? If so...has there been anything or any treatment that has helped with those s...
This might help with hip pain?
GinaD in Sticky Blood-Hughes Syndrome Support6 years ago
I figured out myself that my 18 month down the rabbit hole debilitating hip pain was partly caused by Hughes, and not just the osteoarthrit...
lupus meth/folic acid feeling like crap
donam in NRAS6 years ago
Clinical Trial Phase 1 Completed for PSP, Vancouver BC
psplife in PSP Association3 years agoPOPULAR
PSP Friends: FYI--Announced TODAY
Alectos Therapeutics Announces FDA Orphan Drug Designation for MK-8719: An Investigational Small-molecule ...
For those whose pain killer of choice is paracetamol - be warned!
greygoose in Thyroid UK4 years agoPOPULAR
I never did like paracetamol, it always made my nose feel funny. I was also put off by the fact that if you ac...
karyn38 in PSP Association4 years ago
Hi all, my mam has p.s.p and although she hallucinates and gets very confused whilst she has u.t.i, she also hallucinates when she doesnt.. ...
Are UTI's common in PSP?
Ell1e25 in PSP Association4 years ago
Hello, i wonder if anyone can offer some advise please? My mother has had a UTI for the last month. She is now on the 3rd lot of antibiotic...
If you have muscle and joint pain, what works for you???
siveinvan in Sticky Blood-Hughes Syndrome Support6 years agoPOPULAR
Just lately, unbearable muscle and joint pain; roving around my body...not only kills but makes me sooo tired...seeing the rheumatologist Dr...
Alternative treatments for PSP
harrish14 in PSP Association3 years agoPOPULAR
My wife has PSP, and since we live in NJ she is being treated by Dr. Golbe at Robert Wood Johnson University Hospital. Although there is no ...
Ketchup Woman is near the end
ketchupman in PSP Association2 years agoPOPULAR
I've always dreaded writing this particular post. I've read so many of my dear friends post on this site where they shared the news of the ...
There has to be stuff out there.....
I am an advocate of my father who has PSP. I have been reading everything that I have found in relation to PSP. He has done a cou...
Hello! My name is Alice.
Abrecheisen53 in PSP Association9 months agoPOPULAR
I joined about a month ago, but this is my first posting. My husband John has PSP - diagnosed about 2 years ago. We are not as advanced as ...
I want to cry
It really helps me to vent all of these things to you all...as you know how all of this feels. I am crying. Went to the doc today afte...
I'm finally in the group😪
Allalone2 in PSP Associationa year agoPOPULAR
I have been reading all I could on this group since my husband was diagnosed in June 2014. I think I was I denial a long time as things prog...
The last five weeks have been a little hairy but it is not all bad news.
MaryF in Sticky Blood-Hughes Syndrome Support6 years agoPOPULAR
A few weeks back, I was started on a very very low dose trial of 'Plaquenil'. i was full of hope about this...as my young daughter is doing...
Bioidentical hormone replacement therapy
GinaD in Sticky Blood-Hughes Syndrome Support6 years agoPOPULAR
When one of my docs suggested adding a topical progesterone cream to help me through perimenopause, I agreed, gave it a whirl, and learned t...
Hidden in PSP Association3 years agoPOPULAR
PSP incurable but not the symptoms. RHP in California has a miracle vitamin supplement that has normalised my life
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