I would be really grateful those of you taking Ruxolitinib could tell me the benefits and problems they've experienced as I may be offered it...
Ruxolitinib and weight gain
Hi, I'm just about to start Ruxolitinib and see that weight gain can be a side effect, some people reporting 2 stone or more. I know it sound...
I had a I had a flu jab last Saturday and last night I have a terrible night's sleep and now I have flu! I have myelofibrosis and I spoke to...
Back on an Old Friend
Hello Everyone, , especially to my friends who have supported me through thick and thin ( mainly thin!! ) these many months past , , I hope y...
Omeprazole and Ruxolitinib
Hi all I have recently been changing from Hadroxycarbomide to Ruxolitinib. I also take lots of other drugs including ' omeprazole '....
treatment refusal ruxolitinib
HI, my partner was diagnosed with primary mf at the beginning of January. He was categorised as low risk....
Ruxolitinib and nausea
Hi, I've been on Ruxolitinib for 11 days, for the first 9 days felt great, better than for ages, then yesterday morning was sick several time...
Ruxolitinib or Interferon
Hi everyone I have PV diagnosed late last year and since then it's been a bit of a roller coaster of weekly Vx s and different cytoreductive ...
Minimal Residual Disease or Cure in MPNs? Rationales and perspectives on Combo Therapy with Interferon-alpha2 and Ruxolitinib
Cutting edge therapy for PV - MF patients who do not respond to Jakafi or Pegasys alone - bit.ly/2tBjHVs...
My Spleen is no longer welcome!
Hi guys, I've not been here too much, I have been over on the liver pages. But I thought I would give you an update....
Just about to get a transfusion to see if it helps the fatigue.
Hi Tried to post earlier but not sure it worked so this might be a repeat. I'm MF Jak2 + and ive been on ruxolitinib for nearly 3 months....
My husband was diagnosed with Myelofibrosis about a year ago and is on Hydro and Ruxolitinib. He has been doing very well on these drugs ....
Ruxolitinib for ET?
I was under the impression that Rux is now phase 3 for ET and not yet approved?...
husband diagnosed with MPN possibly PV he is now coming of Pregabalin slowly with the hope very soon he will get Ruxolitinib. Coming off the ...
Should I be asking for ruxolitinib?
My haematologist said the long term plan was to get me on Ruxolitinib and I'm wondering whether I should be pushing for it or just leaving it...
Huge spleen with myelofibrosis
My partner is considered low risk so is on watch and wait. His spleen isn't pretty big though, 22cm and he is complaining of increased tiredn...
Initial weight gains & Higher platelet counts on Jakafi???
Happy New Year fellow MPN-ers... :)...
Over Three Years On Ruxolitinib For Pv and Life is Normal
Have been diagnosed with Pv since April 2012 and since June 2013 was lucky enough to get funding for Ruxulitinib. Is there anyone else out th...
Morning all, I have post PV MF, taking Ruxolitinib, and have been invited for a flu jab for the first time. I've asked both my haematology co...
Hello I have had ET, for 15 years now diagnosed with Myloyd fibroses stage intameadit2 my Heamatologist sent me to the BMT clinic & I was tol...
Start a Community