Weight gain on Ruxolitinib
I’ve been taking ruxolitinib ( 40 mg each day ) for 7 months since PV progressed to MF....
The Force is Strong in This One
Hi Forum Friends , , I had notification of a new follower on here today and I realised how much time has elapsed since I posted an update. Ti...
Little did I know by May 18th, I would be diagnosed with MF Intermediate 1. I have been asking about Ruxolitinib with my Haematologist but I'...
MPN Voice needs your feedback to support an application to the Scottish Medicines Consortium (SMC)
We [ b]URGENTLY[/b ] need your help and feedback to support an application to the Scottish Medicines Consortium ( SMC ) for the prescribing o...
I was diagnosed with PV in 2016 and live in North Yorkshire
Hi I live in North Yorkshire and was diagnosed with PV in October 2016....
Does anyone have experience or advice about erythropoietin injections? My husband has post PV Myelofibrosis and is taking Ruxolitinib....
My ‘ crossover ’ MPN has transformed to Myelofibrosis ( confirmed by BMB ) and my new consultant has decided that the only medication is Ruxo...
Hi everyone. I have myelofibrosis....
Combining Pegasys and ruxolitinib (Jakafi) for MF: has anyone tried it?
Hi. I'm having a grim time at present, as the increased risk of aggressive skin cancers triggered by the ruxolitinib I’m taking ( was inc to ...
As a result of this I had a bone marrow biopsy which showed myelofibrosis....
Potential unrelated donor found
Hi All, A bit of an update. My local transplant unit has advised that a potential unrelated donor has been found for me on the German bone ma...
I was diagnosed back in May last year with MF Calr type 1 symptomatic without enlarged spleen and was started on Ruxolitinib 20mg BD, 300mg a...
A phase 2 study of ruxolitinib in combination with azacitidine in patients with myelofibrosis
Sounds very encouraging bloodjournal.org/content/13......
Haematology appointment this morning 🤔 first one since I stopped all the HU and Ruxolitinib. Interesting to see what my bloods are today....
Rux and Hydroxy
I had my haematologist appointment this morning. Platelets are still high after 8 months on Ruxolitinib 20mg BD so I am to start Hydroxycarba...
PV stinging itch and Ruxolitinib
Hi all I really can’t wait to share how Rux has changed by daily life in less than a week. I was approved for Ruxolitinib and started taking ...
Potential New MF Drug
[ b]CPI-0610 Demonstrates Activity in Patients With Myelofibrosis After Ruxolitinib Failure[/b ] Post by socrates_8 » Tue Aug 20, 2019 7:43 a...
Well I’ve managed to come away on holiday for 2 weeks and forgotten to bring my Ruxolitinib 🤬 can’t wait for the itching and bone pain to st...
Ruxolitinib and aggressive squamous cell skin cancers.
Hi. Update as promised....
Was my Jakafi dosage lowered inappropriatelyand need to be raised?
I have stage 3 myelofibrosis, I was on 20mg of Ruxolitinib signed up for a study drug Navitoclax and the first thing a P.A did not a hematolo...
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