Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,439 members • 15,114 posts

Impulse Control Disorder on Dopamine Agonists. TV Drama Mr Bates v The Post Office

I have been in touch with a producer of Mr Bates v The Post Office. This programme succeeded in forcing the British Government to pardon all those innocent...

I have been in touch with a producer of Mr Bates v The Post Office. This progra...

Joolsg

•13 days ago

78 Replies

Buprenorphine Trial

Some of you may be aware that I have been trying to get a trial of Buprenorphine for refractory RLS underway in the UK over the last 2 years.I initially...

Some of you may be aware that I have been trying to get a trial of Buprenorphine...

Joolsg

•15 days ago

83 Replies

Head felt enormous pain as if it were going to explode. Particularly at the back base of the skull

I’ve suffered from RLS for years and finally after trying home remedies my doctor did prescribe that medication. I was afraid to take it a second time after...

I’ve suffered from RLS for years and finally after trying home remedies my docto...

Lorkadm

•2 hours ago

7 Replies

Opioid Treatment of Patients with Painful versus Painless Restless Legs SyndromeApril 2024Sleep 47(Supplement_1):A293-A294

And another - Introduction Recent studies characterized a clinically more severe and painful (compared to painless) form of restless legs syndrome (RLS)....

And another - Introduction Recent studies characterized a clinically more sev...

RLSLearner

•6 hours ago

10 Replies

RLS & Pramipexole

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Prescribed .088mg Pramipexole by my GP n just told to increase when I complain! I...

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Pre...

Maymount

•1 day ago

21 Replies

new here please help

Hi Im51, I had double hip labral repair and FAI surgery in January and February this year (2 weeks apart) a week after the second surgery I started...

Hi Im51, I had double hip labral repair and FAI surgery in January and Februar...

Zenawarrior73

•10 hours ago

12 Replies

Hello and thanks for having me in this group

My name is Jane and I've suffered from acute RLS for about 4 years now. I was prescribed an evening dose of 2.5 mg Ropinerole by a neurologist here in the UK,...

My name is Jane and I've suffered from acute RLS for about 4 years now. I was p...

Chocolate123Lab

•1 day ago

19 Replies

Pramipexole

Hi, I am actually in tears as I write this, I am trying to get off pramipexole, I was taking 4x 0.088 at night. After the worst two months I got it down to...

Hi, I am actually in tears as I write this, I am trying to get off pramipexole, ...

Thebarber

•16 hours ago

13 Replies

Iron Supplement

Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the...

Hello, I recently started taking iron supplements as my level was 90 and it's ad...

Thebarber

•3 days ago

23 Replies

Methadone for refractory RLS

https://academic.oup.com/sleep/article/47/Supplement_1/A516/7655037 An interesting case of a female patient whose RLS was controlled with methadone. Clearly...

https://academic.oup.com/sleep/article/47/Supplement_1/A516/7655037 An interesti...

Joolsg

•2 days ago

19 Replies

Dosage

I am in the process of going off Pexola. I am now down to 0.25mg from 1mg. Not an easy journey!!! I had a consultation with a new doctor and she was honest...

I am in the process of going off Pexola. I am now down to 0.25mg from 1mg. Not a...

SurvivorD

•10 hours ago

9 Replies

Stabilising buprenorphine dose

After months escaping from DA augmentation and with the help & support of many in this community I reached a period in late 2023 when I started on...

After months escaping from DA augmentation and with the help & support of many ...

davchar23

•27 days ago

68 Replies

absolutely disgusted.

I received a telephone call from my GP this morning regarding a request made by my specialist to prescribe Buprenorphine. My GP had to refer to the senior...

I received a telephone call from my GP this morning regarding a request made by ...

HipHop1972

•1 month ago

77 Replies

SUPPLEMENTS FOR RLS?

I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEMENTS AND WANT TO MAKE SURE I AM DOING THE RIGHT THING. MAGNESIUM+B6 VITAMIN...

I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEM...

piggytails

•6 days ago

33 Replies

Nausea & Buprenorphine

As some of you will have seen from my earlier posts I had succeeded in blocking RLS (after DA augmentation 7 months ago) by use of buprenorphine patches and...

As some of you will have seen from my earlier posts I had succeeded in blocking ...

davchar23

•1 month ago

69 Replies

My niece

I feel so bad as my niece has rls. She is like me in many ways and now has inherited it probably from me. Luckily she hasn't seen any doctors yet. I've warned...

I feel so bad as my niece has rls. She is like me in many ways and now has inher...

Coeso

•23 hours ago

12 Replies

Trazodone

Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every...

Hi , after trying very hard to navigate depression without drugs I have now just...

Rubynessie

•8 days ago

32 Replies

Buprenorphine, Nausea & Zofran (Ondansetron)

I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to...

I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side ef...

davchar23

•7 days ago

27 Replies

Dipyridamole didn't work for me

I was hoping to be able to come off buprenorphine so that my digestive system could return to normal, and was excited to learn about dipyridamole on this site....

I was hoping to be able to come off buprenorphine so that my digestive system co...

707twitcher

•1 day ago

10 Replies

learning to help others

Hi I am new and was recommended this forum by a client who is a RLS sufferer. I am trying to gain insights and understanding from those with lived experience...

Hi I am new and was recommended this forum by a client who is a RLS sufferer. I ...

Betrue2u

•4 days ago

18 Replies

Update- Finally Met with Pain Clinic

Just wanted to post a quick update on my situation. Was referred to the Pain Clinic at the university hospital near me in November. and I've been waiting....

Just wanted to post a quick update on my situation. Was referred to the Pain Cl...

e365

•10 hours ago

6 Replies

buprenorphine is not that harmless: sum

hi. maybe it is time to remind some sufferers. my last post was 7 months ago:...

snoemata

•9 days ago

27 Replies

Daridexorant / quvuviq and RLS

Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets...

Just wondering if anyone else has experience of this sleep aid and RLS? I have ...

Lacey_

•1 day ago

10 Replies

Worse since Wife had hip replacement

Wife been on ropinirole for 20yrs small dose a day. Since hip replacement RLS has got far worse had to increase dose to 1mg per day which is still not really...

Wife been on ropinirole for 20yrs small dose a day. Since hip replacement RLS ha...

Leg7

•16 days ago

33 Replies

I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion

Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve...

Hello RLS people I’ve been here for a while reading & learning, getting the i...

Barnclown

•28 days ago

43 Replies

need help!!

sorry to sound so depressing but I'm just so fed up with this another bad night I've not slept for weeks and it follows me all day long!!! :/ I just don't...

sorry to sound so depressing but I'm just so fed up with this another bad night ...

mariedonnelly

•1 day ago

9 Replies

Escape from Augmentation part 2

I have been excellently helped by several forum participants in my "escape from augmentation" and am now at a stage where I need to report my story and ask...

I have been excellently helped by several forum participants in my "escape from ...

davchar23

•1 month ago

47 Replies

Buprenorphine...help with prescription please!!

Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the...

Since my neurologist retired and I found a new one, my pharmacy is not accepting...

LanaCSR

•27 days ago

41 Replies

Tapering Dowm

Hi Everyone Hope you are all doing well. I am attempting to taper down from Pregabalin. I have successfully come down from 150 to 120mg but I cannot seem...

Hi Everyone Hope you are all doing well. I am attempting to taper down from ...

careerSquirrel

•21 days ago

35 Replies

Burenorphine side effects

I am still struggling with nausea despite buprenorphine success on RLS front. In my daily diary today I wrote:- QUOTE I took a total of 400mcg buprenorphine...

I am still struggling with nausea despite buprenorphine success on RLS front. In...

davchar23

•5 days ago

17 Replies

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