Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

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Head felt enormous pain as if it were going to explode. Particularly at the back base of the skull

I’ve suffered from RLS for years and finally after trying home remedies my doctor did prescribe that medication. I was afraid to take it a second time after...

I’ve suffered from RLS for years and finally after trying home remedies my docto...

Lorkadm

•2 hours ago

6 Replies

RLS: nutrition matters, n = 1

Hi, just want to give an update on an experiment I've alluded to in posts on a few others' threads. I recently was able to wean completely off my pramipexole...

Hi, just want to give an update on an experiment I've alluded to in posts on a f...

HawkintheHills

•2 hours ago

2 Replies

Opioid Treatment of Patients with Painful versus Painless Restless Legs SyndromeApril 2024Sleep 47(Supplement_1):A293-A294

And another - Introduction Recent studies characterized a clinically more severe and painful (compared to painless) form of restless legs syndrome (RLS)....

And another - Introduction Recent studies characterized a clinically more sev...

RLSLearner

•6 hours ago

10 Replies

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Sleep Journal RLS focused in April'24

0390 Efficacy of Suvorexant for Insomnia Disorder in Well-controlled Restless Legs Syndrome April 2024Sleep 47(Supplement_1):A167-A168 Introduction Sleep...

0390 Efficacy of Suvorexant for Insomnia Disorder in Well-controlled Restless Le...

RLSLearner

•6 hours ago

2 Replies

New Opiod Registry Paper published! Year 4.

National RLS Opioid Registry: Four-year Dose Stability, Efficacy and Tolerability April 2024Sleep 47(Supplement_1):A293-A293 John Winkelman Introduction...

National RLS Opioid Registry: Four-year Dose Stability, Efficacy and Tolerabilit...

RLSLearner

•6 hours ago

3 Replies

new to forum and thanks

hi, I discovered you in the middle of the night and am so relieved to find I am not the only person with this, tho sorry others are also suffering… my doctor...

hi, I discovered you in the middle of the night and am so relieved to find I am ...

Sparrowhawk43

•10 hours ago

2 Replies

Dosage

I am in the process of going off Pexola. I am now down to 0.25mg from 1mg. Not an easy journey!!! I had a consultation with a new doctor and she was honest...

I am in the process of going off Pexola. I am now down to 0.25mg from 1mg. Not a...

SurvivorD

•10 hours ago

9 Replies

new here please help

Hi Im51, I had double hip labral repair and FAI surgery in January and February this year (2 weeks apart) a week after the second surgery I started...

Hi Im51, I had double hip labral repair and FAI surgery in January and Februar...

Zenawarrior73

•10 hours ago

12 Replies

Update- Finally Met with Pain Clinic

Just wanted to post a quick update on my situation. Was referred to the Pain Clinic at the university hospital near me in November. and I've been waiting....

Just wanted to post a quick update on my situation. Was referred to the Pain Cl...

e365

•10 hours ago

6 Replies

Antibiotics

I had a Lyme infection, then my rls became much worse. I was given antibiotics which I took for three weeks. After that it got so much better, much much...

I had a Lyme infection, then my rls became much worse. I was given antibiotics w...

kerste

•10 hours ago

1 Reply

Buprenorphine good news stories or not

Hello all I am heading to NYC and will be seeing Glen Brooks MD , for those how don’t know he was the the incredibly compassionate doctor who saved my life by...

Hello all I am heading to NYC and will be seeing Glen Brooks MD , for those how...

Shumbah

•14 hours ago

4 Replies

Pramipexole

Hi, I am actually in tears as I write this, I am trying to get off pramipexole, I was taking 4x 0.088 at night. After the worst two months I got it down to...

Hi, I am actually in tears as I write this, I am trying to get off pramipexole, ...

Thebarber

•16 hours ago

13 Replies

Increased my ferritin levels

Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five...

Hi all,I have known about the RLS/iron link for many years however as my ferriti...

Pippins2

•20 hours ago

6 Replies

And again!

Hi all. I need a bit more advice please! Today I received my prescription for Buprenorphine tablet's and they are 400 microgram Sublingual tablet's, sugar...

Hi all. I need a bit more advice please! Today I received my prescription for B...

Danni54

•21 hours ago

6 Replies

Insomnia

I experienced intense insomnia on Ropinirole. I actually did not sleep at all when I took this medicine and also experienced headaches and confusion. It was...

I experienced intense insomnia on Ropinirole. I actually did not sleep at all wh...

Rejectamenta

•22 hours ago

3 Replies

My niece

I feel so bad as my niece has rls. She is like me in many ways and now has inherited it probably from me. Luckily she hasn't seen any doctors yet. I've warned...

I feel so bad as my niece has rls. She is like me in many ways and now has inher...

Coeso

•23 hours ago

12 Replies

Dipyridamole didn't work for me

I was hoping to be able to come off buprenorphine so that my digestive system could return to normal, and was excited to learn about dipyridamole on this site....

I was hoping to be able to come off buprenorphine so that my digestive system co...

707twitcher

•1 day ago

10 Replies

Hello and thanks for having me in this group

My name is Jane and I've suffered from acute RLS for about 4 years now. I was prescribed an evening dose of 2.5 mg Ropinerole by a neurologist here in the UK,...

My name is Jane and I've suffered from acute RLS for about 4 years now. I was p...

Chocolate123Lab

•1 day ago

19 Replies

need help!!

sorry to sound so depressing but I'm just so fed up with this another bad night I've not slept for weeks and it follows me all day long!!! :/ I just don't...

sorry to sound so depressing but I'm just so fed up with this another bad night ...

mariedonnelly

•1 day ago

8 Replies

RLS & Pramipexole

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Prescribed .088mg Pramipexole by my GP n just told to increase when I complain! I...

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Pre...

Maymount

•1 day ago

21 Replies

Daridexorant / quvuviq and RLS

Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets...

Just wondering if anyone else has experience of this sleep aid and RLS? I have ...

Lacey_

•1 day ago

10 Replies

GPs! Lack of knowledge.

Continuation of RLS with GP. Ferritin levels are 50, normal apparently! I take Ropinirole 4mg and 210mg iron tablets to try and raise Ferritin. The GP keep...

Continuation of RLS with GP. Ferritin levels are 50, normal apparently! I take...

Standing123

•1 day ago

8 Replies

Methadone for refractory RLS

https://academic.oup.com/sleep/article/47/Supplement_1/A516/7655037 An interesting case of a female patient whose RLS was controlled with methadone. Clearly...

https://academic.oup.com/sleep/article/47/Supplement_1/A516/7655037 An interesti...

Joolsg

•2 days ago

19 Replies

Inclined Bed Therapy

I've recently started sleeping on an incline to help with night time breathing issues, but in learning more about IBT, it's claimed to also help with restless...

I've recently started sleeping on an incline to help with night time breathing i...

Barefoot78

•2 days ago

7 Replies

Query re saving posts

can anyone tell me how to save posts that don’t have the SAVE box ? If I save a post that does have it do all the replies to this post automatically get saved...

can anyone tell me how to save posts that don’t have the SAVE box ? If I save a ...

Ruffabug

•2 days ago

7 Replies

cocodamol

Hi I’ve had RLS for many years, as well as some other health issues. I’ve been taking cocodamol for my RLS as I found it was really the only med that worked, I...

Hi I’ve had RLS for many years, as well as some other health issues. I’ve been t...

Allie2016

•2 days ago

2 Replies

Half-life issue?

I take morphine and pregabalin. Both have short half-lifes and my legs start kicking like they read about this on schedule. What do people do about this...

I take morphine and pregabalin. Both have short half-lifes and my legs start ki...

wantokporo

•3 days ago

6 Replies

Iron Supplement

Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the...

Hello, I recently started taking iron supplements as my level was 90 and it's ad...

Thebarber

•3 days ago

23 Replies

RLS severe

I'm been dealing with this for years an the Drs don't know what to prescribe me I need help I take reqip 3 mg an Meloxicam 2 mg but it doesn't really help I'm...

I'm been dealing with this for years an the Drs don't know what to prescribe me ...

GlamMa50

•3 days ago

3 Replies

TOMAC treatment for RLS

https://academic.oup.com/sleep/article-abstract/47/Supplement_1/A301/7654621?redirectedFrom=fulltext This is an interesting article on TOMAC therapy....

https://academic.oup.com/sleep/article-abstract/47/Supplement_1/A301/7654621?red...

Joolsg

•3 days ago

9 Replies

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Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

Head felt enormous pain as if it were going to explode. Particularly at the back base of the skull

RLS: nutrition matters, n = 1

Opioid Treatment of Patients with Painful versus Painless Restless Legs SyndromeApril 2024Sleep 47(Supplement_1):A293-A294

Sleep Journal RLS focused in April'24

New Opiod Registry Paper published! Year 4.

new to forum and thanks

Dosage

new here please help

Update- Finally Met with Pain Clinic

Antibiotics

Buprenorphine good news stories or not

Pramipexole

Increased my ferritin levels

And again!

Insomnia

My niece

Dipyridamole didn't work for me

Hello and thanks for having me in this group

need help!!

RLS & Pramipexole

Daridexorant / quvuviq and RLS

GPs! Lack of knowledge.

Methadone for refractory RLS

Inclined Bed Therapy

Query re saving posts

cocodamol

Half-life issue?

Iron Supplement

RLS severe

TOMAC treatment for RLS

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