Reply from GP re premipraxole and it’... - Restless Legs Syn...

Restless Legs Syndrome

22,167 members16,058 posts

Reply from GP re premipraxole and it’s use in treatment of RLS

RestlessMe profile image
2 Replies

I wrote to my GP today, enclosing information about pramipexole and its role / side effects in the treatment of restless legs.

This is the reply.

“ I can confirm receipt of your correspondence. I am sorry you have suffered unpleasant side effects. I would be most interested to see the information you refer to. I have looked up the CKS guidelines for restless legs which were updated in July 2022 and pramipexole is still listed as a first line treatment.

If you have links then please feel free to attach them to a response. If this is a learning point for the clinicians involved I will most certainly act upon it.”

I have responded and included all the relevant links which I found on here.

Written by
RestlessMe profile image
RestlessMe
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Dotmowatee profile image
Dotmowatee

I live in the UK and sent some papers to my doctor about pramipexole and got a grovelling apology for prescribing them. I take three 0.088mg a day. I don't sleep and manage on one oxycontin a week to give me respite. I can't take gabapentin. I hope you get some help.

SueJohnson profile image
SueJohnson

It is great that he is willing to look at what you send him. I assume you sent him the Mayor Clinic Updated Algorithm on RLS which is up to date unlike the CKS guidelines.

Not what you're looking for?

You may also like...

Levetiracetam (Keppra) to help in some cases of RLS.

Tim61, I posted recently about withdrawing from Pramipexole, which I’m doing at the moment, not...

Nightwalkers Magazine from the RLS Foundation and opiates

There was a great article from the latest issue of Nightwalkers which is the quarterly journal from...

New take on RLS from a physical theapist point of view..

I found a brand new take on rls according to the medical library"- Leg Pain The link will not open...

Treatment of RLS and PLMD in adults - Oct 2019 literature review

I came across this on the internet and found it very interesting:...

Restless Arm Syndrome?

I have seen a specialist and been put on Pramipexole. He said I was unusual as my arms and hands...