History of RLS: I am considering legal... - Restless Legs Syn...

Restless Legs Syndrome

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History of RLS

welschrispy profile image
4 Replies

I am considering legal action against the doctor who has repeatedly prescribed me me six times the max dose of Pramipexole. Presumably any doctor will claim that, at the time, there was no information available which warned of the dangers Augmentation etc.

It seems true that much of what we know has only been available quite recently.

My doctor first prescribed Pramiopexole in 2006 and has been increasing the dose ever since... I am now on 6mg of pramipexole....(and trying to get off it!) When would it have been reasonable to assume that he would have known about the dangers of using this drug?

When should he have been aware of the dangers?

Thanks

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welschrispy
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4 Replies
Joolsg profile image
Joolsg

That is terrible. Augmentation has been known about for at least 12 years. Are you in the UK? Your story should be publicised. Please do join the campaign to educate doctors as your case is EXACTLY why it's essential RLS is taught to medical students and GPs.I hope your doctor is at least helping you through a slow withdrawal.

Joolsg profile image
Joolsg

nejm.org/doi/full/10.1056/n...

Show this article to your GP. Augmentation has been known about since at least 2010 and there are several comparison studies from 2014.

welschrispy profile image
welschrispy in reply to Joolsg

Thank you all for the kindly concern I have received from this web site. I live in BC Canada but I am a UK Citizen so please count me in on any action you make to educate doctors and patients alike.

I am horrified to see that Neurologists are still prescribing Pramipexole! To my mind this is criminal negligence and they should be struck off! Anyone who has been prescribed this horrendous drug should stop taking it before it's too late. It works at first but you don't get anything for nothing. Listen to Manerva and Joolesg.. they know more than any doctor or specialist.

I spend at least 1hr per day writhing on the floor. The convulsions are horrible. I have cut my pramipex dose down from 6mgs to 3 over the last 6 months but I can see little hope of cutting any more. I am now also taking 2- 3 Tramadol 50mg and using Cannabis oil and vaping for sleep. I sleep walk, I fall, I can't read or write more than a sentence and worse still... I can no longer see a way forward or back to a life without this torment.

ironbrain profile image
ironbrain

When the dose went above the maximum dose given in the drug licence, your GP should have been making that clear to you rather than you telling him/her, unless, of course, it was perfectly clear that you knew that already.

gmc-uk.org/ethical-guidance...

In the UK (Wales?), maybe you should first consider talking to your local PALS team.

nhs.uk/using-the-nhs/about-...

Often doctors are left to prescribe off-licence, I feel, without the backing they need. When they do it, it is entirely their responsibility, and sometimes they need to do it for particular patients against general information going about over and above the drug licence. I fear both my GP and I might sleep better if patients were allowed to take on the onus of responsibility in some way in some circumstances. I therefore find it exceptionally unusual that you've been prescribed in the way you describe and would beg you not to take it further unless it is a truly exceptional case of neglect on your GP's part.

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