🧟‍♀️: This is my fourth night with... - Restless Legs Syn...

Restless Legs Syndrome

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bellalurcher profile image
5 Replies

This is my fourth night with absolutely no sleep whatsoever and I’m losing my grip on reality. I’ve been using neupro patches for ages but am now being weaned off them as they started causing the very symptoms they were supposed to help.

As expected my rls is now off the charts and I’m now getting the same sensations in my arms and hands🤪.

All I want is to go to sleep, just for a couple of hours.

I’ve a hospital appointment at 9am and I’m pretty sure that they are going to take me down to 2mg which means that things will get worse and I don’t know if I’ll be able to cope.

I’m really scared that this is going to tip me over the edge.

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bellalurcher profile image
bellalurcher
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KenBR profile image
KenBR

Hang in there:)

And good luck at the hospital.

bellalurcher profile image
bellalurcher

Cheers Ken, even if they offer to hit me over the head with a mallet as long as it sends me to sleep I’ll take it

Madlegs1 profile image
Madlegs1

At the very least ,you should be starting on whatever medication is to take over -- possibly Gabapentin.

Also, you should be getting some medication to alleviate the withdrawals. Tramadol is the usual one. Clonidine can be used at the final weeks stages.

There is a protocol for all this. It should be either in the NICE guidelines or on Dr Buchfuhrer site.

rlshelp.com

Good luck.

Make sure you say precisely that, at the hospital.

Best wishes

+1 on Madlegs1 - they should and can replace the patch with any number of drugs - Tramadol, Targinact, Codeine, Lyrica and Clonazepam to mention a few.

You need something to help the RLS AND to help with the withdrawal from the patch. 2mg is the max for the patch so you are dropping to the max level!!!

I know I am a bit late with this but please read and educate yourself:

nice.org.uk/advice/esnm67/c...

&

cks.nice.org.uk/restless-le...

Good luck

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