Causes of rls continued...

[janland]

Sorry about interruption of message..

Low iron can lead to low dopamine so personally I'm eating as much dopamine foods as I can.

Also other health issues can trigger rls.. such as..

Underactive thyroid..

Kidney disease..

Diabetes..

Parkinson's..

Rumatoid arthritis..

Fibromyalgia..

Some drugs can, such as antihistamines..

Also..other triggers..

Smoking.. alcohol..stress..and lack of exercise..

So I'm trying to look at this problem as part of the whole body which may have other conditions connected.

As I've said we are all different people and so we all have to be treated individually..in my opinion.

Hope this makes sense..

[Hidden]

Hi Janland, you comment does make sense, although I can't see any recent previous message from you.

There's a frighteningly long list of things that can cause or RLS symptoms which in addition could include

Tricyclic or SSRI antidepressants,

Some antacids e.g. proton pump inhibitors

Some anti emetics/ anti vertigo medicines, e.g. Prochlorperazine

Neuropathy, esp small fibre

Some vascular conditions

Melatonin

Sugar

Gluten or Lactose intolerance

Vitamin B12 , vitamin D or potassium deficiency

Narcotic withdrawal.

plus no doubt others that people may be aware of.

Some of these are "causes" of secondary RLS

Some make primary RLS worse.

Some people with primary RLS may not have any of these.

No wonder it's so common.

[johannasuar in reply to Hidden]

Hello Minerva. I just had to write back, I’ve had RLS for 10 years, started out of nowhere, I attributed it to a reaction I got from the dye used in MRI’s, after that incident I started with the secondary RLS, I NEVER Had a problem before. I’ve had my ferritin level checked, plus every test possibly for RLS from my neurologist. I was put on gabapentin at first but it didn’t help me much except gain a tremendous amount of weight that I couldn’t understand since I’m slim and eat very small quantity of food. I’m on Tramadol with excellent success, been on the same dose for 9 1/2 years with no augmentation, I feel blessed when I read if the horrible problems some are going through, my heart hoes out to them, I take a 50mg pill at 5:30pm and another at 11:pm, religiously, I have a timer set so I don’t go past my time and I’ve been under control this way. It’s important to medicate BEFORE the RLS sets in, otherwise you’ll be with an attack for at least 2 hrs before the meds take over. What surprised me was that vitamin B12 and D can cause RLS. I had NO IDEA, that’s when my RLS started, I had been very ill with liver cirrhosis and was put on those two vitamins, plus a few others which I don’t take anymore. I’m going to check this out further but I thank you for the eye opener. I’m going to experiment, I don’t need to take these vitamins anymore, I’m in excellent health and am a very active person. Thanks again, I did know about the others mentioned.

[Hidden in reply to johannasuar]

Just to check you haven't misunderstand.

Vitamins D and B12 do NOT cause RLS.

RLS can occur or be made worse by a deficiency of these. i.e. not enough.

If you were suffering a deficiency of either of these, then taking a supplement/replacement would make your RLS better, not worse.

Otherwise I can really identify with what you say, however in my case it was Pramipexole not Tramadol. I used to take it religiously same time every day, set an alarm to remind me. If I forgot, once symptoms had started, it was too late to stop them.

However, I did augment and I have now completely stopped the Pramipexole.

[janland in reply to Hidden]

Yes..I was under the impression too that vitamins D and B 12 would help alleviate rls...

Not make it worse.

[Lapsedrunner in reply to janland]

janland Manerva mentioned these in terms of DEFICIENCY.

My RLS has definitely improved with B12 supplements

[Hidden in reply to janland]

Great, I wasn't sure if you'd got it the right way round.

[Graham3196]

Hi What are dopamine foods?

Where in your body is dopamine manufactured?

Can your body convert these to dopamine and deliver it to your brain if your ferritin is low?

Graham

[janland in reply to Graham3196]

Hi .

If you Google "dopamine rich foods".. there's a big list of the foods that helps.

Dopamine is made in areas of the brain..it's a neurohormonal and connected with the hypothalamus..

Again..

if you Google where I'd dopamine manufactured.. there's a good article explaining it all..

[janland in reply to Graham3196]

News-medical.net is a good website .

Dopamine is a neurotransmitter... transfering messages..

All very interesting..but personally I'm trying the list of foods to increase Dopamine to see if it helps..plus trying to address other issues such as hypothyroidism and low iron ..

Just trying to fight it .

Last few days..dare I say it.. have been free of rls..

Taking a multi vitamin powder (especially b vitamins) plus iron..rosehip..

moderate exercise.. sleep..

cutting down milk a little..

I don't know exactly why uv been free of it for few days..I still drink tea and coffee .. only decaf in pm..

Hope this helps someone.

Best wishes.

[Hidden in reply to Graham3196]

Ferritin is a protein to which iron is bound, it's a way of storing iron. If Ferritin is low then it means that stored iron is low in which case, there may not be enough for the brain - hence brain iron deficiency. That's significant because dopamine can't work properly without iron.

Dopamine itself is derived from an amino acid (which comes from protein) called tyrosine.

[Hidden]

My understanding is we have enough dopamine, but our receptors are at fault and dont deliver the dopamine to where we need it.

[LotteM in reply to Hidden]

Correct Elisse!!!!

[Eryl]

Diabetes, Parkinson's, Rheumatoid arthritis and Fibromyalgia do not cause rls, but rather are different results of the same cause depending on your own genetics. Many

neurological conditions are different manifestations of a common cause. youtu.be/kAFXjJf9qmg(Not working as expected?)

[LotteM in reply to Eryl]

Eryl, on behalf of a very good friend with Parkinson's and people with diabetes type I, I would like to strongly advise you NOT to add these diseases to your list of sugar-induced ailments. That is very simply not true. It is only your opinion. And your post is implicitly very hard and unforgiving to those people that suffer with Parkinson's and diabetes type I. I don't know enough about the other ailments/diseases, but I do know (which is different from "it is my opinion") that life is not that simple.

Please try to consider what your words imply before you post them.

[Eryl in reply to LotteM]

Did I mention sugar? Did you watch the video? Only my opinion?

[Hidden]

I have Fibromyalgia Arthritis in both top & base of my spine

Osteopenia ( which leads to Osteoporosis) & Post Polio Syndrome & a history of

Hemorrhagic Measles at a very young age!!

So yes I agree we are all different & what suits one person may have adverse effects on someone else.