Sensitivity to medicines.: I was... - Restless Legs Syn...

Restless Legs Syndrome

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Sensitivity to medicines.

Madlegs1 profile image
29 Replies

I was mentioning recently that some ingredients in medications/ pills etc can cause problems for some especially sensitive people.

It seems the scientists have just done some research to confirm my hypothesis.

livescience.com/64986-inact...

My powers increase every day, soon I will be omnipotent!

Must keep taking the pills!😆😉😎

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Madlegs1 profile image
Madlegs1
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29 Replies

Oh you so clever person, how would the forum survive if you didnt find these little treasures. Now go find how some one can take meds that are sensitive to all the ingredients, but as side effects, example, dizzy, drowsy, so are not allergy sensitive related. Off you go. ! :D

I had that omnipotence once - Viagra cleared it up nicely :)

Its good to see I will not be alone, now that others are achieving God like status too.

Uh oh, an omnipotent Madlegs? God help us all!🤣

I believe the technical name for those extra ingredients is "Excipients"

I can show off too :-)

Isn't "Omni Potent" an extra strong multi vitamin?

Seriously, in the UK NHS doctors are being instructed that they can't prescribe "branded" drugs where a "generic" version is available. E.g. They can't prescribe Viagra, it has to be Sildenafil.

That means that some people can no longer get exactly the same drug they're used to. Although the active ingredients are the same, the excipients are different. Additionally, I know in my area the CCG's policy is that if anyone has a difficulty with this it is NOT an exception to the rule. If they want to continue to get the branded version, they have to pay the full cost.

I suppose if anyone was actually allergic to an excipient it could be an exception, but you'd have to prove it, I guess.

Too many show offs on this forum. :P Its getting cluttered up with them. :D :D Lots of people complain when they take the generic med , it doesnt work as well. Example, Requip is usually the one mentioned, when they are given Ropinerole, they say its not doing its job like the Requip.

Having generic medication has other problems. The pharmacy where I get my Pramipexole, (yes, I know about augmentation!), is part of a chain and they get their supplies from a central purchasing centre. Prices of drugs from various manufacturers changes from time time. The chain goes for the cheapest.

When I get my monthly repeat prescription then, sometimes the pills are oval and quite large. Sometimes they're round and large and sometimes there round and tiny.

It's hard to believe that the big tablets have no more pramipexole in them than the tiny ones. They all come in blister packs. The big round ones are OK, the oval ones break and shatter, the tiny ones flip across the room and I spend ages crawling about looking for them.

Funnily enough, the tiny ones are the hardest to swallow. I can't seem to grip them properly with my swallow muscles.

How did life get so complicated?

in reply to

...and to further that complication not only do they have generics, but they have more than one type of the generic! Here in Norway Pramipexole comes under two names — Pramipexol and Orion. Sometimes I would get one and sometimes the other. Even though the pharmacist told me that the ingredients were the same, I swore I did better on the Pramipexol!

Madlegs1 profile image
Madlegs1 in reply to

It's Mirapex here! That's all we're offered in Ireland.🤗

in reply to Madlegs1

Do you pay in full for prescriptions in Ireland or do you pay a fixed limited amount, like in England, or do you get them for free like me?

If you pay in full, I guess it doesn't matter to the doctor how expensive they are.

It's a bit disconcerting when a doctor here is giving a new prescription and says, this should be alright it's not too expensive.

Madlegs1 profile image
Madlegs1 in reply to

It's not a simple system. If one has a medical card- all is free. Otherwise one pays market price up to a max, after which it's free - about €140 per month.

in reply to Madlegs1

Phew, €140 a month doesn't compare well to me getting them free.

When I used to pay, before I became special, I used to buy a yearly NHS prescription card. It was about £100 a year.

Either way, I can't get Mirapex on the NHS

in reply to Madlegs1

Then you are getting the posh ones, the ones which cost more, i believe. :)

in reply to

It's the excipients!

As I believe they say in Norway, "How texas is that?"

washingtonpost.com/news/mor...

in reply to

no Texan sayings over here. Once people figure out I’m from Texas, it’s either:

“Doesn’t Bush live there?”

“Have you ever ridden a horse?” (Weird one since they ride them over here too)

“Cowboy land!”

or

“What do you think about Trump’s wall?”

in reply to

Walls aren't very original.. Latvia have built a fence along the border with Russia, (a sort of wall). Crimea (well Russia really), has built a fence along the border with Ukraine. In France they built a wall along the sides of the entrance to the channel tunnel. Between England and Scotland there used to be two Roman walls from West coast to East coast, Hadrians wall and the Antonine wall. Still bits of them left.

17 million people in the UK want to build a wall between the British Isles and mainland Europe. Although really it's more of a metaphorical wall than a physical wall.

There's still bits of the Berlin wall left.

If course, there's the great wall of china, visible from space.

The world is turning to walls. Don't they realise, unless you build a wall all the way round the world, there always going to be a way round it.

Which has nothing to with excipients, it was the mention of a wall that started me

in reply to

Nice to know...

Sorry I mentioned it....🙂

in reply to

No worry

in reply to

I have Pramipexole too so i know where you are coming from, i have to cut mine as i only take a tiny bit,. they do vary depending on which drug company has supplied them , mine are always small and round, but some seem to be harder to cut than others, never had one flip out of the pill cutter, are you using a pill cutter..? some shatter then i am looking at all the bits trying to work out, how much of those bits work out to what i know i need to take. :P

in reply to

I didn't know pill cutters existed. Ebay?

in reply to

Oh my,.... Boots the Chemist, or any other Chemist. I hope i have now saved you less complication in your life when you get one. lol

Madlegs1 profile image
Madlegs1 in reply to

Amazon.

in reply to Madlegs1

Amazon OR ebay, i was thinking of the charge of them being sent, some charge some dont,

Madlegs1 profile image
Madlegs1 in reply to

Agree-- local Euro shop has them. ( Pound stretcher?)

in reply to

OK, I see. I'm OK cutting them, a very sharp craft knife.

The problem lies in getting them out of the blister pack!

That's when they take wing.

It used to be that the pharmacy I used took them out for me and put them in a bottle. When I changed doctors, I changed pharmacy. I daren't ask them the same, they're not as accommodating as Boots.

in reply to

Do a cut round the blister maybe that will help, I have trouble sometimes getting a paracetamol out of the blister, all the pushing when the blister wont give, is not what you need when you are already grouchy and tired.

in reply to

I confess, I have an easier solution. My wife does it for me! She's not much good at the cutting though, so it's a team effort.

in reply to

Ahhhh, a good woman to help out. She is sensible leave the knife to hubby, keep your fingers. lol

in reply to

Good job I don't have restless fingers

in reply to

Eeeek, imagine, no dont imagine !

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