Can RLS be a separate condition? I have it as part of fibromyalgia/ME

[cat-a-tonic2]

Can RLS be a separate condition? The way it's portrayed in the Channel 5 documentaries makes it look like it's a condition on its own. I didn't know it could exist as a separate condition.

I have RLS as a symptom of fibromyalgia/ME. For me, it feels like someone has attached electrodes to my hips and big toes and is running an electrical current through my legs. I feel like I have an electrical charge building in my muscles, and have to keep kicking to relieve the discomfort.

I have found a massive dose of magnesium every day helps tremendously, but have to take it continuously. There are different types being sold online, and I don't know if one works better than another. When you start taking it, it takes around two weeks to build up in the body before you start to notice a difference. I take 1.5 grams daily, and have done so for several years now. When I have stopped taking it to see if I still need it, the symptoms come back.

Perhaps try a trial of at least three months, to see if it works for you?

As a result, I rarely have an attack any more. If I've pushed myself too hard and am especially fatigued, I can feel it trying to happen - the leg muscles start to tingle and I can feel my muscles tighten - but it doesn't develop fully and is bearable.

I know this won't help everyone, but maybe this can help some people?

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Thank you. Helpful to hear about the magnesium. Re the chronic fatigue/ me I have found thyroid uk really helpful. They have another health unlocked forum. I have made a really good recovery since joining their community. If you post a list of symptoms and your latests blood results there is a lot of expertise on there to help.

[DJTP1962]

I describe my symptoms as bad energy. I can feel it starting to build up and my legs feel like they want to run a marathon, yet when I walk around I feel weak as a kitten. I just kick and wriggle and when it is especially bad I get it in my arms too. I have suffered since I was a small child and am now 57. I resorted to black market medication as I've yet to find a doctor who seems to realise what a debilitating condition it really is and to help me. Thankyou for your input and advice.