RLS

[Emaddy]

My doctor said I have RLS and has tried lots of medications and I’m still the same, it’s like electric shocks going through my legs.. I ended up paying to go private to see a neurologist and he was amazing, after testing he found out I have vitamin B12 deficiency, which also affects your legs, so hopefully I can now get it all sorted.. I never thought that my legs keeping me awake all the time and B12 was linked

[Oscarsaurus]

I am so happy for you, i am considering going private but what type of neurologist do i look for and how do you know if they are experts at RLS relief ?

[Pam34 in reply to Oscarsaurus]

I think you have to be careful. Many neurologists can be as ignorant as GPs and I would hate you to waste your money. Far better to educate yourself and find one you can work with. Are you in the UK? If so I believe Pippins has a list of recommended ones. Perhaps you could message her?

[Oscarsaurus in reply to Pam34]

How do i message her please and thank you

[Pam34 in reply to Oscarsaurus]

Hi

Just click on messages and put in user name Pippins2, then you can send her a private message.

Pam

[Oscarsaurus in reply to Pam34]

Thank you

[Emaddy in reply to Oscarsaurus]

It does all depend on who you see, I went through nhs last time and nothing so that is why I went private, and now I’m having my b12 injections and hope now my legs will start to ease

[Oscarsaurus in reply to Emaddy]

Fingers crossed for you

[Eryl]

The low vit b12 could be a marker that your microbiome is out of balance. It has been found that some gut microbes release neurotransmitters which may be driving your rls. These microbes feed on sugar and refined carbs in your diet and can also cause bad nutrient uptake (like vitamins and minerals).

Try a ketogenic diet for a month or so and you may see a difference in rls and b12.

[Svengolly]

Yes B12 can be helpful .

But Iron is the big kahuna for rls .

Did he test your Ferritin levels ?

[Emaddy in reply to Svengolly]

Yeah my levels are ok there

[Svengolly]

Ok is often not ok for rls people .

Ie some do not respond until they reach 300 or even 400 .

What is your # ?

[Emaddy]

It says on mine that it is 78ng/ml, Ideal is 15-300

[Emaddy in reply to Emaddy]

That’s my ferritin