Ris

[Henshaw241241]

You all no I am suffering with RIS for years I am going to doctors to morrow morning I have been looking up about pregabalin has anyone tried this Tony

[Madlegs1]

It works for some people and not for others. Also has side effects.

What are you on at present and why do you want to change?

[Henshaw241241 in reply to Madlegs1]

I am on pramipexole but don't seem to work much now Tony

[Madlegs1 in reply to Henshaw241241]

Please read up all on "augmentation" on this site. And don't let your dr up the dose of prami. You will have to get off it first and then try gabapentin or pregabalin.

You will need a lotof help coming off the prami.

Discuss with your dr.

Good luck.

[Henshaw241241 in reply to Madlegs1]

I have been on pregabalin 75mg they make me fill terable and makes my legs worce I will have to go and see the doctor again can't see the neurologist till July terable what is the cause of RIS which someone would no Tony

[Katerina22]

I totally agree with Madlegs.

[Kaarina Administrator]

I read from a previous post of six months ago that you have already started to slowly come off pramipexole. How is that going?

[Henshaw241241 in reply to Kaarina]

I went to my doctor's this morning and she has put me on pregabalin 75 mg to try for a month I had my appointment for the neurologist last Tuesday then on the Monday it was cancelled I been waiting for 6 months I can't believe it how long now Tony

[Kaarina Administrator in reply to Henshaw241241]

I remember you saying in another posting that unfortunately your neuro appointment had been cancelled. It is so annoying/disappointing when this happens, isn't it?

[Henshaw241241 in reply to Kaarina]

Hi I am on pregabalin 75 mg at 6 pm then by 830 pm it starts again with the RLS then I am on 75 mg again at 9 pm last night I had a bad night I wounder if I should be on higher dose that's what my neurologist told me 241241 Henshaw all the best to you x

[LotteM in reply to Henshaw241241]

Tony, you have only just stopped the pramipexole of I am correct. See your own post of 3 days ago and especially Elisse2’s reply. You will be suffering withdrawal (= increased RLS symptoms) for probably at least 2-4 weeks after your past pramipexole tablet. Pregabalin often takes a while (=weeks) to become fully effective. And, as long as you are still suffering withdrawal from the pramipexole, it will be hard if not impossible to assess whether pregabalin is effective for you.

As Elisse advised you earlier, and as many RLS expert docotrs advise, painkillers are the most effective medicines during this withdrawal period. For example tramadol. Please discuss with your doctor.

My question to other forum members: is there a leaflet or webpage somewhere that briefly outlines the strategy for dealing with DA-withdrawal? The Allaying Augmentation paper doesn’t discuss it.

[Hidden in reply to LotteM]

Good question Lotte on whether there is a leaflet etc that explains how to wean off a dopamine med. Right now i cant think if there is.

[Webbkaz]

Yes I take pregabalin I suffer with Fibromyalgia and RLS can be a part of that syndrome. My gp put me on a small dose of ropinorol it’s worked wonders it really has. I suffered really bad with it but now when I go to bed I wrap up in a sheet keeping my feet covered with the sheet I have a quilt on top but rolled up away from my feet so the quilt doesn’t touch any part of me from the knees down. I find if I don’t have a sheet on my feet they are fighting and quickly come up to a hot temperature , having a sheet on them (nothing else) keeps them cooler. I haven’t had a problem with my feet since I started on the medication 5 months ago hope this helps