restless leg gets worse

[spiritbox44]

Hi i am new here and suffering restless leg all over my body,have had just leg wise for years,6 months ago over night it affecred my whole body no warning at all.I take pramipexol but they do not do anything.Have had other meds in the past but there names i have forgotten.I am now in the process of trying cbd oil but so far it has dolne nothing.To be honest i have seen several neuruologists and i get the immpression that thay have little interest,i actually said to one i do not underatans when some thing gets worse you cant identify the reason,his answer was well no one hasever died from it so we have no idea,which never pleased me at all.Sleepcouple of hours if i am lucky i have short naps all day,i have to.i can not sit and read a book watch tv,only times i do not get restless leg is when i am driving or walking but as soon as stop walking it starts.Sometimes i get tingling before the jumps olther times a burning sensation,and a weird feeling i can not describe.Crazy as this might sound i do at time feel like ripping my leg apart.My poor wife gets fed up with my constant complaining.

[Madlegs1]

Something is triggering your episodes.

What changed 6months ago?

Do you take any medications such as antihistamines or antidepressants?

Do you drink alcohol regularly?

That'll do for starters!

Cheers.

[Lindy14]

Hi Spiritbox44,

I'm glad you've joined the RLS Club. You should get some useful advice/information from people on this site. I don't like the tone of those neuros you saw. Their attitude in answer to your queries definitely supports your thoughts about their lack of interest in RLS.

They must bear in mind that you going to see them is paying their wages.

I've seen neuros for 50 years for epilepsy and also RLS. You ought to ask your GP if they know of any neuro that has an interest/expertise in RLS. Before I developed RLS I had trouble with the epilepsy. The neuro I was seeing didn't seem that interested in Epilepsy and he didn't help the situation. I asked around and someone gave me a name. I contacted that neuro and could see when I first met how different his attitude was. He helped me get rid of the fits, and he also gave me confidence to object when my GP was trying to reduce the pills during a medication review! I did this be listing how I would be affected by the pill reduction!

When I developed RLS my GP refused to do anything telling me to find my own solution! I was convinced it was incurable, but after several months of agony I plucked up courage to see another GP (luckily the previous GP had retired). The one I saw said he knew nothing about RLS, but referred me to a local neuro. This neuro had an interest in RLS and has worked with me to reduce the symptoms. It involves taking a combination of pills, but my hubby thanks his lucky stars (he doesn't get kicked much!).

You might have tried this, but see if your GP knows of anyone with expertise about RLS, even if it is out of your area. These doctors forget about the affect it has on your life.

Let us know how you get on and get your wife to go with you to an appointment so she can describe what happens and how it affects her.

Lindy

[Hidden]

Hi and welcome spiritbox44 What dose of pramipexol are you taking? You could be experiencing augmentation.

You might need to watch this:

youtu.be/hiow_l5A8DY(Not working as expected?)

And a +1 on Madlegs1's post.

[Joolsg]

Hi spiritbox,

Read the post above yours- DAWS. As RLS has now moved to the rest of your body I think pramipexole is the culprit.

I think you’ll need to get off it. Follow the advice given to the DAWS post. Reduce slowly with the help of tramadol and see GP ASAP.

[Graham3196]

Just to correct the record I would bet that there have been many people killed by RLS by falling asleep at the wheel of a car. I've nearly done it myself. I think lots of single car accidents would be traced to RLS if someone did the research.

Graham