Doctors and RLS: We all have our doctor... - Restless Legs Syn...

Restless Legs Syndrome

21,417 members15,089 posts

Doctors and RLS

nightdancer profile image
3 Replies

We all have our doctor stories about RLS, and being given the wrong meds, etc. To defend SOME of them, a GP only gets about 6 and 1/2 hours of instruction on sleep disorders, which includes RLS, in a regular medical school setting. Unless they take extra studies, or are specializing in sleep disorders or neurology, they do not get much info at all. To me, years ago, that was a valid excuse. Now, in the age of the internet, that is NO excuse to me. These things can be easily searched and any doctor who refuses to do a simple search is not interested in treating something like RLS. For example, my GP takes care of ALL my meds. She farms me out to specialists when needed, but she is the one who prescribes all my meds. So, she is an exception, and always asks ME "What do YOU want to do?" :) I wish everyone here could have her for a doctor.

Written by
nightdancer profile image
nightdancer
To view profiles and participate in discussions please or .
3 Replies
Madlegs1 profile image
Madlegs1

When my own doctor recently retired (the one I had been trainng in for many years) - I had a choice of four drs in the practice. I just picked the first one available - (the one who prescribes Benylin and Amytriptoline for rls sleep difficulties )

Anyways- at the first consultation, she almost immediately greeted me with "oh! I'm so glad to have a patient who does their own research"

I'd love to know what the retired GP wrote on my notes!!! Can just imagine!

I've now moved on to the senior doctor in the group- so far so good. Time will tell.

Keep up the good work.

nightdancer profile image
nightdancer in reply to Madlegs1

I got lucky when I picked my new doc 14 yrs ago. Mine had retired, so I had a list of 7 to pick from, and I luckily picked my angel of a GP. I have told her many times that she cannot retire or move out of town! :) She said she is not going anywhere. She is my security blanket!

Smiler53 profile image
Smiler53

My new doctor will always read the info I take to her from this site. She freely admits to knowing very little about RLS and was quite shocked at how it effected me and others on this site and is now very supportive and open to my research, so we are learning together.

You may also like...

DOCTORS and RLS

most doctors seem reluctant to work with RLS patients. I called 4 doctors given to me from RLS org.

Effective communication with your RLS doctor

communicate with your doctor about your symptoms, the better the results. Example: rather than...

New RLS health forum for doctors

https://rlscurbside.org/ Dr John Winkelman, a top RLS expert based in Boston has set up a website...

finding a doctor who prescribes opioid for RLS

and have had Dr Buchfuhrer as my doctor who prescribes opioid for my RLS. Lately after I have been...

What doctor to go to for RLS?

or my neurologist? Or find someone who specializes in this disorder? Thank you so much.