Happy me.: Just thought I would share... - Restless Legs Syn...

Restless Legs Syndrome

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Happy me.

restless1973 profile image
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Just thought I would share this. I know different meds work for different people. But after using ropinorole and pregabalin for some time, my quality of life was terrible due to the side effects, extreme drowsiness and weight gain. I then was put on the neupro patch, alongside zapain and apart from a little reaction to the patch adhesive, things are a lot better. I can even sleep on the bedroom floor instead of the living room floor. Still find beds a no go though, but the bedroom is still a plus. Does anyone else find beds hard to sleep in.

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restless1973
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Well, I'm glad things are better. Is there a reason behind you not being able to use a bed? My aunt can't sleep in a bed either because of back issues, so she has slept in a lounge chair for decades. I don't recommend that, though, since her hips are now locked in a bent position and she has developed neck problems.

I suggest mentioning this to you doctor. I don't know all the science behind sleeping in a bed vs. no bed, but sleeping on the floor can't be good for you in the long run.

restless1973 profile image
restless1973 in reply to

It's hard to explain. The hardness just seems to ease my legs. No matter what I do if I am laid in a bed, my legs hurt. But it is eased once I am on the floor. In fact I sleep really well on the floor.

in reply to restless1973

Fair enough. Whatever works, right? I'm just glad you can now sleep in the bedroom!

taylor9 profile image
taylor9

I like a firmer bed, but couldnt sleep on the floor !! the Pregabalin was an awful meds for me, caused extreme confusion . I think most , if not all of the dopamine meds cause weight gain, sadly

I gave up on Ropinirole some years ago when my Consultant put me on skin patches, which for the most part work OK. Re sleeping on hard surfaces, I find it definitely helps to have a hard mattress on the bed (though have slept on the floor in the old Ropinirole days). Think it's to do with pressure being applied to nerve endings in the legs which send signals to the brain. Likewise if, in the middle of the night, I sit on a hard stool in the kitchen, it relieves the symptoms and I find I can lay me head on the worktop and cat-nap. But, as I say, the patches do their job, and I maybe have just one night a month where the demons strike, and no way would I go back to Ropinirole. Good luck to all sufferers.

Graham3196 profile image
Graham3196

I have slept on the floor for years because of my back. Doctors were no help with the back and about once a year my workmates were amused by my quasimoto stance as I walked around bent in half. I can sleep about 5 nights in a bed before my back starts to hurt. When my RLS was bad my wife was very happy to have me anywhere else so I couldnt reach her with my vicious kicks. I used to sleep on just a blanket but now use a thin blow up air bed to ease the pressure on my hips. I dont think it helped my RLS

restless1973 profile image
restless1973

Don't know what it is bout a bed that brings my RLS on. I do know that a cold surface is great for easing the pain. As long as I have a quilt over me, I'm great.

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