Circadin for sleep?

[picol]

Has anyone ever tried Circadin for sleep, along with pregabalin?

I have tried it one night only , resulting in severe RLS till I finally got up at 6 am in desperation.

I read in the data on the drug that this is a chance in 1:1000 !

Had to be me!!

Picol

;;;:

[Madlegs1]

Don't go by the drug company info.

I Google all meds " med and rls" and look at those results from real people.

Good luck.

[picol in reply to Madlegs1]

Thank you Madlegs.

I will certainly do that.

I used it the next night so I could tell the quack it was hopeless and slept 7 hours, with no rls !

So will have to give it a fair go.

Thanks for so much help

Picol

[Madlegs1 in reply to picol]

There are so many triggers for rls- it's difficult to isolate any particular one.

A diary can help - but you have quite enough hassle with a littlun , without me advising you more rubbish.

All the very best.

[Hidden]

Circadin can ramp up RLS for alot of people. We have had members on here who have tried it and had to stop taking it.

[picol in reply to Hidden]

Thank you Elisse.

I will give it a fair try.

Picol

[LoisTonya]

6am sounds like a good time to get up. I've been up since 4am. Did you have rls all night?

[picol in reply to LoisTonya]

Yes!

6 am is ok but with a baby in the house a bit of a problem.

And yes, had been in torment since before midnight .

I am sorry you were up so early, and in torment also.

Just wish you better nights with lots more sleep.

Picol

[LoisTonya in reply to picol]

Yes, I'm 81 and living alone so it doesn't cause problems to anyone else when I do my chores in the middle of the night. Rls is enough of a problem without having to consider your baby etc. Are you on medication? Hope you have a better night tonight.

[wairoa36 in reply to LoisTonya]

Thank you for your concern.

I too am 81,and the full time great grandmother nanny of a 2 year old !

So a bit of sleep serves me well.

Her Mother is a full time vet student here in Australia so I came from my home in Canada to help.

So I have a newish GP who is really trying to help me but has categorically refused me any more OxyContin which worked marvellously.

She came up with the new med for me, the Circadin, so I will give it a fair trial.

I also take pregabalin and pramipexole.

Thanks to all for so much support and practical help.

Picol

[LoisTonya in reply to wairoa36]

You have got a lot to cope with.

[lauraflora]

May I suggest 5-HTP and/or tryptophan, which are the amino acid precursors to serotonin, which is the major sleep neurotransmitter in your brain? Your brain makes melatonin from some of the serotonin (this is one reason that melatonin alone is not helpful, in that your brain needs the serotonin itself as well for the sleep process.)

Also GABA, as an amino acid, which calms the brain, and is necessary for sleep. Or glycine, another amino acid, which also calms the brain and the whole system.

The sleep neurotransmitters are inhibitory, as compared to excitatory neurotransmitters. None of these products above seem to set off RLS, at least in my experience, my reading, etc. (Tho all of us are different.) A good product that combines many of these aminos is Sleep, by Youtheory (on Amazon, tho I got it at Walmart here in the USA.) Otherwise 5-HTP, etc. can be gotten at health food stores, and over the counter at many drug stores.

A very good book that explains, really well, the sleep process that goes on in our brains and what to do about it if it is not working, is Julia Ross's book The Mood Cure. It is not only about sleep, but chapter 12 is the chapter that covers sleep.

[picol in reply to lauraflora]

Thank you .

I will try to get that product, and give it a try

Picol

[robbitybob]

Hi Picol

Found that Circadin (timed release melatonin) did indeed ramp up RLS for me as well. While it did initially help me sleep a little better, over time the impact was negative.

Found it caused full-body RLS in me (i.e. legs, arms and trunk).

Have replaced it with aromatherapy (using aromatic oils rubbed on upper chest, neck and forehead) to help me fall asleep.

My current primary treatment to combat RLS is Tramadol.

Robin (New Zealand)

[picol in reply to robbitybob]

Thank you .

I did give it a try but it did give me so much trouble and yes, it was starting in my arms and body as you say so having read your note I just said no more.

It was starting at different times of the day too , when I had never had rls before.

So enough. If I sleep only 2 hours , but no rls, then so be it.

I will try all the other methods suggested on this wonderful site.

Hadn't thought of oils

Thanks so much

Picol

[Hidden]

I don't rate it for those of us with RLS.

It is used to put your body back in a normal sleep cycle. That is good for people who have gone through a period of stress or the like and sleep is off with the initial problem resolved and the drug gets you back sleeping normally.

RLS will strike and keep knocking us out of rhythm so will have to keep using it but afaik its not meant to be used that way.

That is a pity about the GP and oxy. I wonder would they be so reluctant to prescribe if they had RLS themselves?!!?

Hope things come round soon, take care.

[picol in reply to Hidden]

Thanks Raff.

I got a long spiel from the GP on how good the Circadin wd be and how it worked but yes, the data as you say does not lend it to our problem.

She is really trying to help me but has decided I have 2 separate problems-- one is RLS and one is lack of sleep!!

So she plans to deal with them separately!

But I am not going back to her in a hurry-- get more help here.

Thank you very much.

Picol

[Hidden in reply to picol]

lol treat them separately f**k me but do Drs not realise we are a complex interconnected organism with each system impacting on another in the process of homoeostasis? That is like saying we are going to address your diabetes but we wont be looking at your diet.

I firmly believe that all disease, (that is DIS - EASE anything that effects us negatively be it psychologically, physically or spiritually) impact on all other parts of the body. Drs know this as they will be fit to tell you back pain is effected by mood our digestion by stress. Equally fast food can cause depression as can certain infections.

I digress the upshot of my little rant is that our RLS must not be treated as a single issue. So much impacts on it - diet, lifestyle, neurotransmitters, etc. Sleep itself is a multi faceted thing and is influenced by diet, lifestyle, bodily process, pain, stress, and the list goes on and on environmental factors, family life, work and on!

I'd ask her how she intends to treat the two separately especially as the two are interlinked and both impact on each other with other factors that are the same for both conditions - eg our GABA/Dopamine system effects both RLS and sleep!

So sorry yet another person left suffering due to another's inability to do their job, one that you pay for be it at point of access or via taxes Hope you get sorted soon.

[picol in reply to Hidden]

HaHa!!

Good one Raffs!

Good to rant-- I just held my tongue and got out of there, but next time she will get a few home truths.

So little understanding of the problems, by the experts.

Picol